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Old 12-28-2017, 06:51 AM #1
Kd2017 Kd2017 is offline
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Hi Robert,
I hope this finds you well. Just wondering how you got on with your Lance Adams query? My partner has been diagnosed with the syndrome after a cardiac arrest, which really impacts his physical and subsequent mental recovery. Would love to hear any tactics or methods you've used to help yourself?
There is so little information out there about it!!
Cheers,
Kirsty
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Old 06-08-2021, 03:15 AM #2
SarahPrior SarahPrior is offline
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Hi Robert and Kirsty, I was diagnosed with LAS in Oct 2014 after a cardiac arrest causing a hypoxic arrest. Was put into induced coma for 12 days. Tried to bring me round but kept seizing violently so sedated again. Was in hospital a total of 12 weeks. Luckily the neurologist at the time spotted the signs and symptoms and diagnosed LAS. Physio and the right combination of meds in each case is vital. Unfortunately not a lot is known about our rare species and I have found we have to find our own path and fight for what we believe is best and works for us. **
Last edited by Chemar; 06-08-2021 at 06:41 AM. Reason: ** NeuroTalk Guidelines
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Old 10-09-2021, 04:46 PM #3
james 826 james 826 is offline
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Default Have you tried FYCOMPA also known as Perampanel?
I have LAS and learned about FYCOMPA thru this journal article - contact Berhard J. Steinhoff

The Germans have some of the most experience with FYCOMPA (Peramapanel).
I've been using 2mg/day and it has made a HUGE difference in my life.

Good Luck!
James Casselman



Quote:
2016.05.001
PMCID: PMC4939387
PMID: 27437182
Add-on perampanel in Lance–Adams syndrome
Bernhard J. Steinhoff,⁎ Matthias Bacher, Christoph Kurth, Anke M. Staack, and Reinhold Kornmeier
Author information Article notes Copyright and License information Disclaimer
This article has been cited by other articles in PMC.
Go to:
Abstract
Perampanel (PER) is the first-in-class selective, noncompetitive α-amino-3-hydroxy-5-methyl-4-isoxazolepropionic acid (AMPA) receptor antagonist that has been licensed and marketed as antiepileptic drug (AED) indicated for patients with partial-onset and primary generalized tonic–clonic seizures. A positive effect was reported in some patients with epileptic myoclonic jerks in idiopathic generalized epilepsy and in progressive myoclonic epilepsy.

We treated a male patient with posthypoxic nonepileptic myoclonus (Lance–Adams syndrome) with add-on PER and achieved an almost complete cessation of jerks. This effect was reproducible and, therefore, we suggest that it might be worth trying PER in comparable cases.
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Last edited by Chemar; 10-09-2021 at 07:33 PM. Reason: **New Member / Guidelines
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Old 10-10-2021, 11:17 AM #4
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Welcome james 826.
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Old 10-10-2021, 11:19 AM #5
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Welcome SarahPrior.
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