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benign fasciculation syndrome

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Old 11-06-2017, 11:01 AM   #1
zant
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Frown benign fasciculation syndrome

Hi I was diagnosed with benign fasciculation syndrome, and at first it started off at my forehead, but then moved to virtually every part of my body. It might have to do with my laptop bumping the side of my head, but I don't know. Is there any hope of this resolving, or do I have to live in this Hell for the rest of my life.
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Old 11-15-2017, 06:33 PM   #2
zant
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If anyone has any insight on this condition, please let me know.
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Old 11-29-2017, 01:07 PM   #3
MightyDog
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Default This is happening to me too

Hi there,
I haven't been formally diagnosed but I've been having strange fasciculations for the past few years. I did see a neuro doc to make sure I wasn't having symptoms of ALS or MS. Sometimes it goes away for months and then it revisits in a new or familiar place. I am not sure if it's stress related. I have heard some sort of study that says to stay away from wheat or gluten. Have you heard of anything such as this? Also I try to take extra magnesium (up to 400 units) each day - not entirely sure if it helps!

I hope you are able to get some relief!
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Old 05-31-2018, 10:06 PM   #4
johnsmith4000
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Quote:
Originally Posted by zant View Post
If anyone has any insight on this condition, please let me know.
I had them bad for 15 months after a bad concussion 19 months ago. I tried many things to get rid of them. I finally worked with a practitioner on skype who told me he thought increasing my thyroid dose would help. Well, it did. However learning how to supplement thyroid will take a very long time to do. Its not something mainstream doctors know much about, and the blood test they will give you to test your thyroid will just be a budget TSH test which almost never indicates hypothyroidism when it is present. If you believe you have hypothyroid symptoms, you will have to take your health into your own hands if you want to try this. Maybe it was a fluke that my fasciculations have reduced around the same time I made thyroid dose adjustments, I cant know for sure. But I am now no long bothered by the small amount of fasciculations that I still get because its much much less. I now view them as reminders that I might need to take some thyroid.

An effective natural thyroid surrogate that you could try in the mean time would be the synergetic combination of caffeine with niacinamide. Its important to take this with food as well, or at least lots of cream and sugar, to negate a potential stress response from a heightened metabolism and no fuel (food) to burn.

note: living in a warm sunny climate lowers the chance that you may benefit from thyroid supplementation due to the beneficial effects of sun exposure. I believe low body temperature, cold hands and feet and stress problems are the most common indications of hypothyroidism.

Last edited by johnsmith4000; 05-31-2018 at 10:21 PM.
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