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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).

Orthostatic Tremor from Small Fibre Neuropathy?

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Old 04-04-2018, 04:37 PM   #1
Join Date: Feb 2015
Location: North of Scotland, UK
Posts: 525
Default Orthostatic Tremor from Small Fibre Neuropathy?

I’m increasingly anxious that I might have Parkinson’s Disease as well as acknowledged small fibre neuropathy (SFN) relating to my confirmed Sjögren’s and historic Rheumatoid Arthritis.

This sounds a bit slow I know but it’s taken me 8 years to recognise that the slowly progressing warm glow (not unpleasant) I get off and on in my arms with need to encase my hands and arms in warm, soft cushions or pillows when still or resting is actually due to an extremely fine tremor everywhere. And because this has only recently started showing up in a more noticeable resting tremor and sometimes an essential tremor around my body - I’ve assumed it’s part of SFN of my Sjögren’s.

My neurologist has made light of the impact on me due to normal reflexes and nerve conduction tests. So finally - what with this unaccountably strange problem with standing still (my knees/ legs won’t carry me so I have to sit or walk or lean on something) my GP (I’m in UK) has referred me to a different neurologist - hopefully one specialising in movement disorders.

This time I’m not taking any nonsense about “heightened health awareness” or just due to presumed SFN from a neurologist. I’ve read up and finally identified the problem being due to a rare type of tremor, orthostatic tremor - which describes mine entirely.

What would be really helpful to know from anyone here is if this could be an aspect of my presumed SFN (never even confirmed by skin biopsy because the neurologist refused to run this test) or presumed autonomic dysfunction? I feel I must get answers soon as my life has been turned upside down by the widespread numbness and tremors now and my gait and balance and mobility are increasingly affected.

And on top of it all I’ve realised that it might be significant that part of my right knee is entirely numb at the on the outer side. I’m told I have no large fibre involvement at all, reflexes are brisk but mild ataxia and distal numbness are confirmed.
If you get lemons, make lemonade

Hashimoto's, RA, Primary Sjogrens with Small Fiber Polyneuropathy, Hypertension, IBS-C and GORD.
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due, i’m, neurologist, sfn, tremor

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