Need some help. I’ve been seeing a neurologist for 4 years and am still undiagnosed. Would love to hear from someone out there that shares my symptoms. I’m frustrated at not having answers.

I’m experiencing involuntary muscle spasms. They begin with my neck jerking and progress to my arms and legs. These can last from minutes to hours. My arms flail up in the air and my legs kick out. It’s bad at night but can also happen any time of the day. I have been in meeting and will fling my pen across the conference room table. When my arms flail, typically I will also yell or call out. I can be asleep and jolt upright in bed screaming and confused.

I have speech problems like slurring my words and using the wrong words. I will repeat things over and over and get mad when you don’t understand me. I think I’m making sense and I’m not.

I get brain fog and can’t concentrate. I was trying to call a coworker. A number I dial frequently. I called 5 different people in a row trying to dial this person.

My husband says I will look confused. I feel disconnected.

These are some of my symptoms. They can last from days to weeks

Anyone else experiencing this?

Hi jsherwood

Welcome to NeuroTalk .

Your muscle spasms (myoclonus) sound very concerning to me.

The information in these two links may be of help to you.

Myoclonus - Symptoms and causes - Mayo Clinic

General Myoclonus - NORD (National Organization for Rare Disorders)

With care.

Thank you kiwi33

I will do some more research and hopefully get some answers soon. I'm frustrated at not knowing the cause of these symptoms and my current neurologist has basically given up doing any further testing once she ruled out it being MS. She told me that I needed to see a psychiatrist.

I went to my GP this week and he is going to try to get me a referral to a neuropsychiatrist. I'm at a loss.