Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 08-16-2011, 03:01 AM #11
kerrijosam kerrijosam is offline
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Cool restless FOOT syndrome

I was having the same symptoms as all of you and actually was diagnosed with "Tarsal Tunnel". I had such a hard time getting to sleep because my feet would just burn and not stay still, I would get in the shower and just spray the coldest water for 5 minutes or so and it would help temporarily.
Since the surgery on my feet, it had not improved so now I just take Tramadol. If I take it by 6pm every night, I am able to actually sit through a movie whereas before my feet would drive me crazy...needing to keep the moving, and I sleep with no problem at all. If I miss the 6pm deadline taking my pills, I pay for it later. I never want to be without my Tramadol. It is a non narcotic pain reliever. It does not effect me the way it does with everyone else, my husband took one and he was knocked out, my daughter took one for her back and it made her hyper...I take 3 and it does nothing but even out the stupid restless feet. Hope this helps someone!!
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Old 08-17-2011, 09:32 AM #12
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Hi kerrijosam,

You might like to search or post/repost over in the Peripheral Neuropathy Forum here where you can maybe get more information about how to relieve the pain without having to take the tramadol all the time.

http://neurotalk.psychcentral.com/forum20.html
Peripheral Neuropathy Forum
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Old 06-27-2012, 03:16 AM #13
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Frown need help!

So ive had the feeling of rls in my toes for about 16 years, ive tried literally everything i can think of to help with this problem, i also feel that my toes are to close together, i dont know it that has anything to do with the rls but i usually get it on my left side leg nd arm, if anyone has any suggestions please id love to know them
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Old 08-24-2012, 10:27 PM #14
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Default restless leg

yes me too it's difficult to sleep!
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Old 02-16-2013, 02:19 PM #15
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Confused

Quote:
Originally Posted by Tootsie View Post
I have restless feet. At night when I go to bed I tend to lay there rubbing one foot over the other. So strange. It's hard to relax and go to sleep.

I wonder if anyone else has this problem.

Tootsie
I have it 24 hours a day especially when I try to relax and watch tv it is driving me mad can any one help, I've had it all my life and it is worse since ive had two stints out into my artries.
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Old 02-16-2013, 02:34 PM #16
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Confused Restless feet driving me mad

[QUOTE=Woodsy49;957702]I have it 24 hours a day especially when I try to relax and watch tv it is driving me mad can any one help, I've had it all my life and it is worse since ive had two stints put into my arteries,i try sitting with my foot on something frozen from the freezer until my foot goes num sometimes it works but usually i just walk the floors.
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Old 05-08-2013, 02:25 AM #17
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Before I had L-dopa I could take when I needed, I saw a doctor who thought my problems was just run of the mill cramps (how he got that from "the urge to move my feet" I don't know) and so prescribed me cyclobenzaprine. One dose made the RLS get so bad that I could not sleep for 3 days, at which point I went to the ER and was given a couple days worth of Valium.

I got six hours of sleep, woke up and threw away the cyclobenzaprine. Never again will I take that crap!

Before that, though, I would rock my whole body back and forth and usually focusing on that and the movement that came with it was enough to get me to sleep.
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Old 06-22-2013, 03:48 AM #18
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Default Just curious

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Originally Posted by CayoKay View Post
for me, what works is to stick my feet outside the covers, and hanging off the edge of the bed, at the side.

it seems to work, to have nothing *touching* them.

a few years back, besides being restless, they were also burning and tingling and hurting.

I placed a board under the covers at the foot of the bed, to hold the covers UP and away from them.

nowadays, the restless legs usually only bother me if they're *dangling* (I'm 5' 2" and many chairs are too tall for me)

so, I use a foot-rest when sitting, and cross my legs at the ankles, remembering to switch frequently.

I don't take any of the standard meds for RLS.
.
What if we have tried hanging our feet off of the bed and couldn't sleep at all?
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Old 09-14-2013, 05:13 PM #19
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Wink Restless legs+feet

I too am a sufferer. I do have a tip which works for me.
Put your finger in your mouth+ then rub the finger vigorously up+down the back of the knee joint. ( back of the leg). It's the acid from the saliva in the mouth that does the trick.
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Old 01-21-2022, 03:03 PM #20
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I started with what I now know is RLS or restless leg syndrome after a cervical surgery. It started in the hospital. I think from all the narcotics they were pumping into me. It is absolutely horrible to have to keep constantly moving your legs. It is exhausting. I ended up with some nerve issue after surgery. I then found this drug called Gabapentin. A soon as I started this the RLS disappeared and its been over a year now never to return. There is a form of Gabapentin just for RLS but the normal stuff is working for me. So happy this is gone. I felt like a zombie all day just from no good rest.
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