I had a therapist about 9 yrs ago who suggested to my doctor that I should go on Effexor medication. One pill was all it took and I could not control any of my limbs for hours. I never did regain my balance after that one pill, and I refused to ever take another one. I have now been diagnosed with Essential Tremors and prescribed Primidone- right now 400mg/day. The Tremors affect both my arms and legs. I know DBS is probably in my future. I have been fighting this now for about 9 yrs.
Last yr, I got to where I could not even get around our home without a powerchair. Insurance wanted to balk at the price, and suggested to my doctor that I should be referred to a Neurologist and a physiatrist. The Neurolgist ran some tests and prescribed Primidone, starting at 50mg and now I am up to 400mg/day. Feeling like the dosage may have to be increased again. About the same time I saw a physiatrist who recommended physical therapy. The two together have now allowed me to walk short distances. Like maybe 5 to 10 minutes maximum. My brain is also beginning to work again. I got so forgetful that I was a real danger. Forgetting that I put food on the stove etc. Thankfully after a couple of events, got strong smoke detectors. So I managed to not burn our home down. I understand that Primidone become less effective as time progresses, but for now I feel like it is kind of giving me my life back. Would like to hear from others whom are also going through these trying life events.