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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS). |
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10-20-2008, 08:20 PM | #11 | ||
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11-20-2010, 06:11 PM | #12 | ||
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Hello, I realize this is a older post but if you have had success with your treatment I wold love to hear from you, please post. I have had ET since early childhood and have learned a few things since then, I am now 47. First in terms of directly answering your question, we would have to come to a consensus on Homeopthy, usually this is meant to discern true homeopathic treatment which the principle states that a disease can be cured by a substance that produces similar symptoms in healthy people. However many people use the term to mean non tradidional or herbal treatment. My first point really fits both sides. I found a study years back in JAMA that demonstrated that theophyline from tea can be used to treat ET. All natrual sources of caffine produce the 3 major forms, theozanthine, theophyline, and theobromine (sorry on spelling), but usually make far more of one than the other. Tea produces mostly theoophyline. I tried this and noticed immediate help!!! Black tea seams to work the best for me, green tea seems to be too strong for me. I always have to be carefull not to overdue it about two cups of tea a day does the trick for me. Regular caffine from coffee makes my ET much more pronounced, which is too bad since I love coffee. Also on the non medical side, Vitamin D about 1000 units per day is supposed to give some relief as well as B12, both seem to give mild help to me as well, especially the Vit. D. Finally as a personally observation I was on a true low carb diet for about 4 years and my ET almost stopped completely durring that time, no sure why I have never seen anything on this. Good luck to you please post with any success you have had. |
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03-08-2011, 03:21 PM | #13 | ||
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I had a therapist about 9 yrs ago who suggested to my doctor that I should go on Effexor medication. One pill was all it took and I could not control any of my limbs for hours. I never did regain my balance after that one pill, and I refused to ever take another one. I have now been diagnosed with Essential Tremors and prescribed Primidone- right now 400mg/day. The Tremors affect both my arms and legs. I know DBS is probably in my future. I have been fighting this now for about 9 yrs.
Last yr, I got to where I could not even get around our home without a powerchair. Insurance wanted to balk at the price, and suggested to my doctor that I should be referred to a Neurologist and a physiatrist. The Neurolgist ran some tests and prescribed Primidone, starting at 50mg and now I am up to 400mg/day. Feeling like the dosage may have to be increased again. About the same time I saw a physiatrist who recommended physical therapy. The two together have now allowed me to walk short distances. Like maybe 5 to 10 minutes maximum. My brain is also beginning to work again. I got so forgetful that I was a real danger. Forgetting that I put food on the stove etc. Thankfully after a couple of events, got strong smoke detectors. So I managed to not burn our home down. I understand that Primidone become less effective as time progresses, but for now I feel like it is kind of giving me my life back. Would like to hear from others whom are also going through these trying life events. |
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