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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS). |
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12-31-2007, 06:59 PM | #1 | ||
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Just checking in after being gone a long time!!
I had tremors, RLS and chorea major and chorea with athetosis in my left hand it was all Lyme disease and it is all gone and has been gone for years now thanks to longterm antibiotic therapy. Just thought I'd throw that out there in case anyone didn't know Lyme could cause that & because my left hand moving my itself was for me the strangest to deal with of all my symptoms- Take care all- Sincerely, Sarah aka CaliforniaLyme on LymeNet |
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07-03-2008, 04:12 PM | #2 | ||
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I am new, but saw the word "tremors". I have been diagnosed with essential tremor, mine is genetic. I have it in my left hand and it has changed my life. I have no control over it and am no longer socially active as I was at one time, like singing solos in church, being in charge of meetings, etc. I am so happy for you that yours is gone.
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10-20-2008, 08:17 PM | #3 | ||
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10-23-2008, 09:11 PM | #4 | ||
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I suggested in various health sites to tap into the power of the internet. I was suggesting (long-term suggestion) a website which allows the patient to key in the symptoms (the patient knows best), the computer will then generate possible diagnoses, print them out, present it to your doctor who will then make a final diagnosis. That should limit the trial and error stage and the frustration of both doctor and patient. I thought of this idea since right now, I'm not exactly sure what I'm suffering from after my accident last 6Sep03. The neurologist then termed it as Myoclonus or more specifically, Lance-Adam's Syndrome, but when I read about the symptoms, they don't appear to match mine. |
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10-24-2008, 08:34 PM | #5 | ||
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It says to be able to post links, I should have 10 posts. I currently have 8. So this post is just meant to meet that requirement.
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10-24-2008, 08:34 PM | #6 | ||
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I hope this site will eliminate the need to have a certain number of posts before posting a link.
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10-24-2008, 08:35 PM | #7 | ||
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Someone commented I was the only one to make that suggestion, which gives the impression there's not much demand for this, that the current set-up is already fine. I think they have that impression as not many patients complain or make those kinds of suggestions. But when they get to hear many patients making similar suggestions or complaints, then my suggestion could get somewhere. Last edited by Curious; 10-25-2008 at 08:19 AM. Reason: per nt guidelines re links to other forums |
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10-26-2008, 08:48 PM | #8 | |||
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Hi Sarah!
Thanks for dropping back in! Life can get so hectic and demanding, can't it? Hope all is well! {add: I hope you all don't mind that I just dropped into your forum, *ahem*, I saw Hello and thought i was linking to an MS thread...lol....now that's cog fog from an ms'er for you! }
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01-14-2009, 04:24 AM | #9 | ||
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I really admire testimonials like yours!! Thanks for sharing. Only three things can helps us to move forward. At least that s what I think: specialists advice, understanding of people around us, and positive behaviour ! Only taking a look at your words anyone can see you deal with them all. Thanks for sharing. It is so helpful.
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