I also started losing the use of my left leg. My doctor's first MRI was also for MS, which was negative. Then I had MRI's on my back and spine- negative. I then went to a local neurologist and had an EMG, still nothing. After quite a few visits and almost 2 years after the onset I was referred to a neurologist who specializes in dystonia. That's what it is.
I get botox injections to relieve some of the muscle movement. It doesn't go away completely but helps somewhat. However this has affected every area of my life. I also developed drop foot and wear a brace.
The issue is that not too many doctor's even know what dystonia is so they can't diagnoze it. I was really lucky to get this doctor, he's great!

Hello--hope you don't mind but I have a few questions. I was also diagnosed with cervical dystonia and vocal cord dysphonia. I had my first Botox treatment in April and my second about 4 weeks ago. My first treatment took 3 1/2 weeks before it kicked in and started to wear off quickly. This time it didn't take much away?? Do you think that it won't work for me?? How long ago did you start your Botox? Did it work the first time? Any info will be greatly appreciated---hutch

I had the pins and needles in my feet and terrible weakness years ago ,when I was exposed to chemical toxins (Tester's model airplane paint, and turpintine) I was making dough ornaments to sell & painting them, I got to where I couldn't even brush my hair and hardly climb steps. The doctor sent me for a test for myasthemia gravis . When this was going on....about all I could do was just sit....so I spent more time painting! (not knowing this was the cause) When Christmas came that year, I put the paints away and after a few days started to recover from "whatever" had caused my problems. We were all happy. Well August came and my husband said that people were asking if I would make the Christmas ornaments again. I agreed to do it. The very first day the paints came out and the terpintine...POW , it hit me so hard that I sunk to the garage floor..my body went right back into the same symptoms, but worse! Then , we knew what had caused it all. I was so chemically sensitive for years that I couldn't be anywhere near anyone with perfume, or go down the laundry isle of a grocery store (my lungs would tighten and head would hurt so quick that I could hardly drive home.
I am still sensitive to strong chemicals and between them & pesticides from farming, feel that they brought on PD symptoms much earlier in life than I would have had them. I am now 57. With addition of fava tincture daily, I feel good and am mostly symptom free at this point...but how I wish I had not had the expossure to toxic chemicals!