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spinal myoclonus...questions?

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Old 06-05-2009, 06:57 PM #1
k4gypsyrose k4gypsyrose is offline
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Default spinal myoclonus...questions?
I was just diagnosed with spinal myoclonus today. What can I expect?

Is it progressive? Can they turn into generalized seizures? HELP!!
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Old 04-29-2010, 02:11 PM #2
janemarie janemarie is offline
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janemarie janemarie is offline
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Default spinal myoclonus
Quote:
Originally Posted by k4gypsyrose View Post
I was just diagnosed with spinal myoclonus today. What can I expect?

Is it progressive? Can they turn into generalized seizures? HELP!!
Hi, I also have recently been diagnosed with the same disorder. They put me on carba levadopa which replaces the dopamine in the brain which was depleted by my RSD. This and the deteriorated spine is what cause the episoeds. I have had some actual seizures but mostly myoclonic episodes. It can get better. Know that you are not alone, friend. I am under the same starts. This also comforts me. Take care,
Janemariek
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Old 05-03-2011, 11:38 AM #3
kingdbn kingdbn is offline
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Originally Posted by janemarie View Post
Hi, I also have recently been diagnosed with the same disorder. They put me on carba levadopa which replaces the dopamine in the brain which was depleted by my RSD. This and the deteriorated spine is what cause the episoeds. I have had some actual seizures but mostly myoclonic episodes. It can get better. Know that you are not alone, friend. I am under the same starts. This also comforts me. Take care,
Janemariek
Hi
I have had SM for many years, had all the MRI scans,x- rays, blood tests, different meds wich always make me feel ill. When the medication weakens my spasms are unbearable, sometimes I go for 3 days without sleep. I exersice at gym regulary, swim lots , eat well but to no avail. Doctors shove meds down your throat, but there seems to be no cure. Any ideas that will help.
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Old 07-30-2011, 01:09 PM #4
tonijo tonijo is offline
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Question muscles in back
I dont know if I have spinal myoclonus but mine is multifocal head to heal even soft pallet and asofical tremores found out from upper gi at rest trenors and well alot but I am most worried about back dose mri come back good mine dose the only test I think I havent had it lp so very painfullI take alot of meds siniment ,nerptin soma clozapam norco,ultram ect Tonijo
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