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#1 | |||
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Elder
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I've had imaginary water running down my calves, imaginary spiders crawling on my legs and arms and scalp, and imaginary "things" flying around the house.
This is the first time I've had imaginary things biting me. I've looked in the mirror TWICE, sure there were little teeny bugs biting my scalp, ears, neck, forehead. I even got the magnifying mirror, but they AREN'T THERE!!! If they don't drive me crazy, I'll end up slapping myself to death trying to kill them. AAAAAARGH!!!
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: | braingonebad (08-30-2009), Lady (08-27-2009), SallyC (08-30-2009), soxmom (08-28-2009), tkrik (09-03-2009), Twinkletoes (08-30-2009) |
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#2 | |||
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Elder
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aww, that sounds awful.
![]() Can you try ice packs, or hot packs, or massage, or tickles? something to change the sensation? I cant imagine how exhausted you must be.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#3 | ||
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Member
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#4 | ||
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Quote:
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#5 | |||
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Grand Magnate
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I used to get what we in the upstate ny area called "sweat bug" bites. Whether that's a real bug or not - have NO idea. But it has a tendancy to happen if you sleep in one position and sweat heavily at night - especially in summer. It can feel like something is biting you and can become a rash over time.
If you haven't been having problems with being too hot at night, it could be a nerve thing too. If it's driving you batty, you probably should give your doc a call. ![]() ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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#6 | |||
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Member
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The bug crawling feeling was my first symptom. Lasted about 2 months. started with a bug falling down my trouser leg, then he'd run up my top.
Advanced to left neck, ear and shoulder- millions of fetherlight tap dancing micro bugs. I'm convinced van gogh had ms as I would gladly have cut off my own ear to get away from the crawling. That sentiment was what convinced my GP there was something going on with me. I still have the ear thing. Just cut off lots of hair to stop it itching my neck and face. It gets painful when my hair brushes my face. I have a permanent cat rubbing up against my leg. My thigh and knee has a burnt feel. and will someone PLEASE tell the FOOL tapping on my side to get lost !! i thought mine was scabies also. fortunately, it was all in my mind... ![]() |
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#7 | |||
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Senior Member
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B2U,
I had all the same sensory symptoms as you are getting. That's what they are. They are invisible to the doctor, but yet you can feel them. It is the nerves under the skin, and your sensory perception. The bug bites are a slight electrical shock that your mind interprets to be a bug. The brain names it for what it knows in the past. The wet pant leg used to drive me crazy, but that left after a few years. I still get the "I feel like there is a bug crawling in my head in bed sensation", like a spider or whatever. I get the bug bite feeling on my legs, arms, side of face, mostly anywhere it wants. But more so when I am in a relapse. I really think they are all slight electrical signals, from the brain, that you feel, because they have gone haywire. I think your brain may re-wire itself over time, and the feelings start to change for the good or the bad. Sometimes I try to ignore them and darn it, a mosquito gets me. It was real. I hate when that happens. Neurontin is supposed to help with sensory systems, but it stopped working for me after 7 years on it. Just letting you know others get this too. We all perceive them a little different, like Pud's friend said hers were like. And like dejibo said, try to change the feeling. If it is pain, rub it or put heat on it or cold. If it burns try a vibration, try to change the sensation your brain thinks its feels. It is real, you are not the only one. ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | Twinkletoes (08-30-2009) |
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#8 | ||
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Member
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Wow..here I thought I was going NUTS! I saw this thread and I just had to reply. I have not been actually diagnosed with MS yet but they are pretty certain that I have it. I have TOS & CRPS/RSD and all the signs of MS.
For the past several months I have been going crazy with this bug feeling. It started on a trip to see family and I felt like I had ants on back. At times it actually felt like bee stings. It would come and go. Then it started on my legs with this feeling of bugs crawling all over me. I would be in the grocery store, in the dairy aisle looking at my legs and slapping myself like I had bugs on me. I felt like such an idiot! Nothing was there but it feels like it! I get this feeling often and I'm always looking at my legs and arms for bugs. My back also gets it. Here I thought I was going nuts! I also feel like I have water on me at times. It's weird but now it makes sense after reading your posts. I just try to ignore it when it happens. I'm on large amounts of neurontin which helps. I've been on it for over 2 years now. My problems never seem to end. |
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"Thanks for this!" says: | Twinkletoes (08-30-2009) |
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#9 | |||
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Wisest Elder Ever
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This is an interesting thread.
Those of us with Peripheral Neuropathy, we get this too. That water going down the leg... I had this as the beginning symptom of Meralgia Paresethetica. This is an entrapment of the lateral femoral nerve. I had it for years, from my C-section surgery. It progressed to terrible stabbing pain attacks. When Lidoderm patches came out I tried them, and with time the nerve settled down, so now I hardly have much problems anymore with it. The bug sensations, I get them on my lower legs. Sometimes. Certain foods make them worse. MSG additive for one. and also nightshade veggies (esp potatos). I also have a over sensativity to the hairs on my lower legs. If any breeze brushes them it feels like bugs. When I shave I always seem to miss a few here and there, and when those move...it is an odd sensation. In winter when my legs are covered, I don't have those feelings at all. If I sleep with the fan on, I can get these anywhere! Another thing that can do this peripheral nerve thing is Candida. So if you have a yeast infection it might activate these sensations..itching. The byproducts of Candida release aldehydes and they affect the sensory nerve endings. So while I don't have MS I can relate to this post. Over the years we have had PNers who post similarly.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Lady (08-28-2009), Twinkletoes (08-30-2009) |
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#10 | |||
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Elder
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I find MSG makes many weird lil symptoms crop up for me. I think I am overly senstive now that I have been completely weaned from it, and go far out of my way to avoid it. When I find it has been secretly added to a food I didnt expect, or wasnt included in the list of ingredients, and I had to look it up to find out, I get headaches, crawlies, itchies, and more.
I hope you are feeling better today. ![]()
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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