Hey! Im spilling my guts out over here!

Actually I am feeling quite a bit better. I have my cough under control which was a major factor in keeping this thing ticked off. I have been working very hard just to get things into the calm down lane. I DONT want any kind of surgery while I have a cough. Can you imagine? I would just be in agony.

Have made a deal with the surgeon that the next time this happens, I will go in for an urgent CT scan, and then it will be a 99% chance I will have the surgery, but I cant even imagine with a cough. They said no keyholes for me, they would have to do big boy surgery, and would take about 3 to 4 feet of my intestine out. WOW!

I really hope you feel better soon Dej . This surgery sounds like the bowel resectioning that my son, who has Crohn's, had three years ago when he was 15. They really have remove a good bit of intestine for it to have a bad effect on you. I know his situation is much different than your's, but he doesn't regret the surgery one bit . He didn't have it done until it was a last resort. I don't think he would want to put it off again . I made the decision since he was so young.

It sounds like this procedure will really help you. Surgery sucks but with pain you're having, i'd seriously consider it.

Feel better, Dej.

Did the surgeon mention the possibility of a temporary colostomy bag? My son didn't need it but he only had about 8 inches removed.

Aww Dej, one thing after another huh?

At least you can rule out your vacy from Copaxone in this one, and you did get the answer to another health issue that could have been much worse if left undetected (who knows right?).

Be well!

Dej - it sounds awful! Hope you're still feeling better today though.

it's funny - I've actually had a sensation like that before, and I don't even have MS. (well, nothing dx'ed.....you know......)

It was on my 'dodgy' left side (a lot my sx's seem to be on the left)
and felt like just as you described - but not as bad as yours at all - like my insides were doing a flip.. or I had something in there! (yes, felt like a baby squirming).

If all your tests are clear, and others on here with MS experience it as well... well, surely it's an 'MS thing'.....?

Feel Better Dej..

I am feeling half human today. This cold has kicked my butt! I almost never get colds, so when I do they are a big deal for me. I have had a fever, and a cough for like a week now. Enough! I was at the grocery store shopping, and even though I wiped down the handle, I remember on the ride home, I broke my own golden rule, and wiped my eyes. I had like a sleep booger in my eyes and I remember rubbing them. What was I thinking! Then I slept with the fan on, and wet hair and woke freezing. Let the sore throat begin. All the zicam in the world wasnt enough to prevent this sucker from taking me.

Now that the coughing is calming I am hoping this will allow my poor tender tummy to rest, and calm. Its really hard to get your tummy to slow down, and get rest when your hacking. I cannot imagine tummy surgery while coughing. no way!

Expecting the MS center to call and weigh in on this issue. It was a long holiday weekend, and I left a message about the MS hug vs this intestine thing. Thanks for all the hugs, and well wishes. they really do help.

Im glad you are feeling a little better this morning Dej.

OK, Deb, my little pun / joke was that it sounds like the surgery could be a crapshoot! Hope you aren't offended. I really do think that it would turn out fine for you. In fact, my Grandma had part of her colon removed years ago and she never noticed any ill effects from it.

I always joke around about things like this with me. In fact, one of my doctors told me my humor was inappropriate! I told him that it was my body and if I chose to make fun of what it was doing, then it was my business not to mention my way of coping.

as a nurse/medic I learned "tumor humor" long ago. Things that would make the public gasp and think we had lost it. Its a great way to relieve the stress of a bad situation.

Thanks for the giggle.

Finally got a call from the MS center. I would have to not be well on a long holiday weekend. its a skeleton crew there today, but they did discuss it, and have all decided that what I describe does NOT sound like MS sx to them. Said what I am describing would be quite rare, and while not impossible, it would more than likely be intestinal, not MS. MS can affect the intestines, and ....you can hear the story in your own heads. They reccomend follow up with surgery MD or general MD to get more conclusive proof of what is making this happen.


DH is now getting on board, and is not happy with the lack of progress I am making, and has asked me to let them at least do the CT scan. I have agreed. I have eaten nothing but soup, and mush for a week now, and have lost 10 pounds. I wanted to lose weight, but not like this.

I was asking about stopping copaxone around surgical time, and was told "probably" but since no one was left in the office to ask, she will get back to me. She said she knew I wanted to stop copaxone, but this was drastic, yes? another one with "tumor humor"