Please do get the CT scan and keep us posted.

Yeah, Deb, you probably didn't have to go to this length to get another copax holiday! Glad you can appreciate my twisted humor (pun not intended).

I have lost more than 10 pounds, am touchy, and painful. While my coughing is better, the little bit I still do isnt helping my tummy heal any quicker. I called the surgeons office and asked for that CT scan. Its scheduled for tomorrow at 7:30 AM! good thing I am normally an early riser. Sheesh! thats an obscene hour to get up and be ready for anything.

Cross your fingers for me. Its just a CT scan, I keep telling my self, its just a CT scan. YEp, I get to drink nasty liquids, and gag my way through the junk, but its just a CT scan. I just have to lay down. Why do I get so nervous?

This scan should show if I have the "folding" pattern in my LOWER intestine. This is why so many folks have missed it in the past. The upper corner has become unhooked, and that causes slack in the line, and a "folding" pattern of intestine in the lower pelvis. The pulling from the intestines folding and putting pressure on the line makes that "tug" sensation I have been feeling. As it goes on year after year that tug pulls down more and more of the intestine into the fold. Since I am not completely recovering from this episode, he feels it may have pulled down even more.

I dont want a right hemi colonectomy! no thank you! why cant this be a hang nail and I get an RX for a manicure? or a massage? come guys! work with me here.

I get this to and literally it feels like a baby kicking. I myself even though I have my tubes tied have went and bought a pregnancy test on a couple different episodes of this. Well I didn't want the doctor to think I went crazy. So I have never mentioned it before. But if you find out what it is please let me know as well if not we can always say its the MonSter inside of us.

Had my CT scan at the crack of insanity this morn. I was at the hosp at 5:30 am and they gave me that yummy berry flavored crap to drink. I complain bitterly when they give me that stuff, because its full of aspertame! that stuff messes with me, and gives me a brain splitting headache for 2 days after having it. They no longer carry the plain stuff without flavors. When they offer you something to drink now, its DIET! they dont carry regular ginger ale or juices, its all DIET! aspterame and I dont get along. So, they give the nauseous girl something yucky to drink. I choked it down, and was ever so proud, and then waited for it all to sink to the bottom. Got in the room, and he hands me another glass to drink! I took two swallows, and starting gagging, and he said "thats enough!"

They took a complete history, were careful to elicit questions about where on my tummy I feel the pain the most, and they were careful to listen. They re read the MD notes and re examined me, and asked me to hold my hand over where it hurts the most, while they lined up the machine. Last CTScan was 7.5 mil slices. This one is 2.5 ml slices, so much more detail.

Will have more answers in a day or two. Till then, I am nauseous with a headache, and am crawling back into bed with my kitties. I hope they can figure this thing out. Im tired of it.

are you feeling any better???

AWw thanks for asking Puds friend. I feel better, and then its back, and then its better, and its back. My coughing is down to a dull roar, and I am hoping as it goes away, that will help my tummy calm down.

No word from the hospital folks. Last I heard was there were several of them combing over the scans, and hang in there. I was reminded if I couldnt take it anymore, I could go to the ER, and the surgeon on call would see me night or day. To be honest, I am hoping to avoid any surgery. I would prefer to handle this will rest or something.

Will have to wait at least the weekend to hear "official" word of what even more folks think this is. till then, I am in the very slow lane.

I'm so sorry Dej, the pain, the tests, the waiting, it all sucks . I hope you get some news and relief soon.

heard from the surgeon. He said...

1. dont see the flipped over intestine that would come with the cecal bastule. Dont see the fold that would ID it as that condition.

2. They see that I had a dialted junction, but that would not explain the sx.

3. Cannot see any reason why that corner, or bend in the large intestine would be so painful.

4. will continue to pour over the results with the gastro/radiology/surgery team.

5. if nothing else can explain it, they MAY have to chaulk it up to being an MS "hug" or MS issue. Since no other tests have proven or disproven anything else, they feel that perhaps it just may be an MS related issue.

the surgeon was extremely nice, and told me he is not dropping, or dismissing this issue. I have given him quite the puzzle, and he wants to figure this out. He doesnt want me to feel I am being pushed into the "its just MS" corner, and promises to keep pegging away at this.

Since my cough is getting better, so is my tummy. I seem to be past this flair.

yes, they are technically calling this now an "ms flair or relapse" well....crap! again, I ask..."flair or over reaction??! I have been so stressed by this stupid thing.

Have I said I HATE THIS STUPID DISEASE?