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Old 09-03-2009, 05:08 PM #1
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Default Flair? or over reaction?

First, let me say I took my 2 week copaxone break, and went back on this stuff kicking and screaming, and will break down and cry if someone tells me that I caused this by taking a break.

Once or twice a year, I get this weird tugging, sensation in my intestines just under my right rib cage. many MDs through the years have said "come see me when it happens again" I call, and they say "we can see you in two week." its gone by then. The new AlaCarte MD said "come in today!" so, in I trudge. I feel like i have to lean to the left, and I cant explain it any better than to say, I feel like my liver is trying to flip over. He was impressed with the size of the muscle that was standing out on the ridge where my liver sits. After careful palpation he said he doesnt think its my liver, but...off to CT scan I go. Negative! off to Xray I go. Negative! blood work all negtive incl LFTs and CBC except small rise in platelets which is normal for me.

I normally can have that tug feeling under my rib cage, but once or twice a year WOWIE! it literally feels like my liver is trying to flip. All those who have been pregnant, and remember the feeling when the baby swooped, and rolled over? I keep expecting that to happen to my liver! anyway, After much poking, and some careful questions by the ala carte MD he said he can find nothing truly wrong, and found it bizarre. He has schedule me to see a surgeon in the AM "just in case" He also said "do you think this could be an MD thing for you?" Huh?! Not one MD has EVER said that this may be MS related....why didnt I think of that?

So, cast your votes now! what is your opinion. Btw, you should know I just got over an ear infection, and was and still am running a low grade fever, which always makes me feel poopy. I dont normally run a temp when this silly thing happens.

This has been happening for at least 10 years, and each year its a lil more intense than the year before. it will leave in a few days or up to two weeks is my record, and then...it will be quiet till next time.

Has the fever caused me to lose my mind? did I have one to start with? it wasnt a long trip to lose it...anyway....

It is 24 hours a day without break.

What is this? Is it MS?
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Old 09-03-2009, 06:18 PM #2
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I had a "thing" quite a few years ago before MS was confirmed where it felt like a baby kicking and/or turning (no chance!) under my ribs. It lasted a few weeks. It wasn't painful; just strange. I didn't do anything about it, but I was mystified. After MS was confirmed I just figured I'd blame it on that.

If yours has been coming and going all these years, it probably is just an annoyed muscle, brought on by the fever. I would think anything dangerous would have showed up in your tests or at the very least, caused some major pain. Sounds like your Dr. is on top of things.

Keep us posted!

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Old 09-03-2009, 06:28 PM #3
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Quote:
Originally Posted by CarolM View Post
I had a "thing" quite a few years ago before MS was confirmed where it felt like a baby kicking and/or turning (no chance!) under my ribs. It lasted a few weeks. It wasn't painful; just strange. I didn't do anything about it, but I was mystified. After MS was confirmed I just figured I'd blame it on that.


C
NO WAY!! My neuro thinks I am crazy when I told her about that. It's happened to me a few times in the last year and normally lasts a week or two. The last time I actually went and bought a pregnancy test just to be sure! I am so glad I am not the only one!
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Old 09-03-2009, 07:07 PM #4
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I hope it's not a flare, Dej..

It could be one of those change of weather thingys.
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Old 09-03-2009, 07:38 PM #5
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(((Dej))) Giving you gentle hugs.

Could it be from MS, absolutely. It sounds like a milder form of the hug. This was one my presenting symptoms and one that I now deal with on a daily basis to varying degrees. I have it on my left side and when it becomes more "active" you can actually see not only the muscles in the ribcage but the complete outline of my stomach. Ouch!

The good news is that your liver appears to be functioning normally. Phew!

I hope it is not a flare and that you start feeling better soon.
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Old 09-03-2009, 07:41 PM #6
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The way I think of it is, anywhere that has nerve endings or a nerve supply, in theory, can take damage as your myelin is eaten away.
Though the liver has no direct inner nerve paths through it, it does have a supply to the bile duct and surrounding areas, portal veins and hepatic arteries. Otherwise the blood supply would not be under control.

So I think that where there is a nerve, there could be damage.
Now whether this damage can cause pain, discomfort or sensations is another matter.
But if nerve damage in the spine can cause you to feel 'water running down a leg' , then I think anything is possible.

Take it easy.
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Old 09-03-2009, 07:55 PM #7
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OK, maybe I understated the pain level. it has been rocking on a 7 out of 10 for me most of the day. it doesnt stay there, it can go as low as 4 but ramp back up to 7. its PAINFUL!

I loved the feeling of my baby rolling around my tummy, and that is the only way I can describe this, BUT it feels like he grabbed onto my liver and is yanking! I am not preggers, long ago had the factory shut down.

One theory is that the fever from the ear infection set off a flair. The MDs cant find out what is making this happen, and clearly can feel it when they put their hands on my tummy. They have all said they have never seen anything like it. Dont ya know its special when they call in an office partner to "come see this thing!"

I have written an email to my neuro office, I am sure they will respond bright and early. Its HUGE for me to go see a surgeon for a second opinion. I am a "stop touching me" kinda girl.

Thanks for the hugs and well wishes. they mean alot.
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Old 09-09-2009, 12:12 PM #8
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Quote:
Originally Posted by legzzalot View Post
NO WAY!! My neuro thinks I am crazy when I told her about that. It's happened to me a few times in the last year and normally lasts a week or two. The last time I actually went and bought a pregnancy test just to be sure! I am so glad I am not the only one!

I get this to and literally it feels like a baby kicking. I myself even though I have my tubes tied have went and bought a pregnancy test on a couple different episodes of this. Well I didn't want the doctor to think I went crazy. So I have never mentioned it before. But if you find out what it is please let me know as well if not we can always say its the MonSter inside of us.
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Old 09-10-2009, 09:13 AM #9
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Had my CT scan at the crack of insanity this morn. I was at the hosp at 5:30 am and they gave me that yummy berry flavored crap to drink. I complain bitterly when they give me that stuff, because its full of aspertame! that stuff messes with me, and gives me a brain splitting headache for 2 days after having it. They no longer carry the plain stuff without flavors. When they offer you something to drink now, its DIET! they dont carry regular ginger ale or juices, its all DIET! aspterame and I dont get along. So, they give the nauseous girl something yucky to drink. I choked it down, and was ever so proud, and then waited for it all to sink to the bottom. Got in the room, and he hands me another glass to drink! I took two swallows, and starting gagging, and he said "thats enough!"

They took a complete history, were careful to elicit questions about where on my tummy I feel the pain the most, and they were careful to listen. They re read the MD notes and re examined me, and asked me to hold my hand over where it hurts the most, while they lined up the machine. Last CTScan was 7.5 mil slices. This one is 2.5 ml slices, so much more detail.

Will have more answers in a day or two. Till then, I am nauseous with a headache, and am crawling back into bed with my kitties. I hope they can figure this thing out. Im tired of it.
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Old 09-11-2009, 09:16 PM #10
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are you feeling any better???
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