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Old 10-09-2006, 08:17 AM #21
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Sally, some of these doctors are for the birds, and I reckon not even the birds will have them! lol I find much of the attitude amongst the med profession is 'if I don't know (of) it' it can't be right...' I have so little respect for the majority of these quacks that for the most part I can't be bothered with them. I'm glad you got sorted anyway, however you did it.
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Old 10-11-2006, 11:30 AM #22
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Hi All,

I've been on LDN for 10 months now and it basically gave me my life back! The only reason that I go on boards is to help spread the word about LDN and to help others who want to get on LDN! Otherwise I'm healthy enough and well enough to just live a normal life!

Now I realize that not everyone sees the amazing results of this medicine that I did, but there are those who do and I want them to know about this drug.

When I began I was in the middle of an exacerbation and my RRMS was progressing...........I was going down hill quickly and was powerless to do anything about it. Then I stumbled onto LDN! Wow what a discovery it was! I now do anything and everything that I want to do!

The only time that I am aware that I have MS is when I get sick with a cold the flu or an infection and then it wears me down to a point that MS begins to rear it's ugly little head. As soon as I get better from the illness the MS again disappears.

So I'm a LDN lifer!
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Old 10-11-2006, 12:19 PM #23
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Welcome, Monica. Glad you found us.

If I didn't know better, I'd say you were selling snake oil. We have a responsibility to all PWMS to not overdo it on the sales pitches.

LDN does help many people, but you are one of the lucky ones, who started it at just the right time for your MS, and it seems to have stablized you. I too have stablized, but in the SPMS mode rather than an earlier stage.

LDN does not go back and wipe out nerve damage that has already occurred. LDN IS NOT A CURE.

I am so happy that your MS is in remission and that LDN is helping you stay there. I hope it lasts forever for you. But, remember, MS, all by itself, can go into remission.

I wish all PWMS would try LDN. Nothing to lose and perhaps a lot to gain. It's a good thing in my book, but like all drugs, it's not for everyone.

Good luck, Monica....You go girl!
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Old 10-11-2006, 12:34 PM #24
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You make some very good points, Sally. However, I do believe that for SOME of us, LDN can make THAT much difference in our lives. When it does, it's hard not to scream it at the top of our lungs.

One thing about LDN is that it only stays in your system for about 18 hrs (if I recall the # correctly). It's effects seem to last a little longer for me, but if I am not on it for more than a day, I feel it BIG TIME!!! I've had plenty of opportunities to test that theory, even blindly.

I have had this disease a long time now, and I my pattern of attacks and disability had become consistent, or worsening over the last several years. LDN has changed all of that for me, including reducing my EDSS.

I know it doesn't work for everyone, and some people have less change/improvements. But, I truly believe it is having a significant impact on progression, relapses, and symptoms, FOR ME.

JMHO

Cherie
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Old 10-11-2006, 12:47 PM #25
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Sally,

I'm not selling snake oil and for me the results of the LDN were so immediate that I have no question in my mind about what this drug is doing for me and many others.

I have on occassion forgotten to take the drug and boy did I pay for it the next day!

I also said that not everyone gets the same benefits from this drug that I got.......but that for those it does work for the result is usually quite obvious.

The earlier a person begins LDN in the course of the disease the better the result they will get.

Thanks for the well wishes!
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Old 10-11-2006, 01:20 PM #26
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I understand your excitement, Monica and Cherie.... I'm doing the happy dance too!!

I've just heard so many stories from people, who are disappointed, when their LDN does not do for them what it does for you lucky ones.

I want everyone to try it too, but not to expect too much..KWIM?

Carry On LDNers.
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