Hi again all

Just wondering how those on LDN are getting on? I had a wonderful beginning and it seems to have tapered off. Don't know if it was the heat this summer or just that time of the year (relapse time) but things went really pear-shaped there for a while. I'm doing a wonderful Frankenstein impression! lol How is everyone else getting along?

Hi AGR. I'm on LDN 3.5 yrs now and still doing well. I did increase from 3 to 4.5 for the last 1.5 yrs. No MS progression, and no exacerbations, improvements have stayed, as in better balance, better mood, less spasticity and better strength. I still have most of the MS symptoms that stayed with me. Too bad LDN doesn't go back and wipe it all away.

The heat, is still a killer, but I manage to stay in the A/C, as much as possible. I have had some heat mini-flares, but getting plenty of rest and getting cool usually puts me back to normal.

I hope everyone else is doing as well. Try not to expect too much from your LDN. It doesn't work BIG miracles, just little ones, but, to me and for me, LDN is "Da Man".

Two years and counting on 3.0 mg. However, the next time I speak with my neuro I'm going to ask about upping the dosage somewhat since it doesn't seem to be working as well as before.

At least I feel as though I'm doing something proactive for my ms being I can't tolerate the CRABS -- and I have to admit, swallowing one pill a day sure beats that sharp old needle!

Take care all.....Judy -- aka msproperlady

Bumpidy Bump.

LOLLLLLLLLL I thought they had paved the road around here...LOL

Just curious. Has anyone gotten around to doing double blind testing on LDN. I have a friend who uses it and swears by it. I asked but she was not aware of any definitive testing that says> yes, we can now say for sure LDN does...blah, blah, blah....

Also- love the eagles soar....jet engines line. m

There have been some little trials, M, but nothing by big pharma, that makes the front page. I think, in time, it will be proven, that LDN is a symptom management and a neuron protective drug.

It's not a cure, but it sure is making a lot of people feel better. That's a lot better than the reports from people on the ABCRs.

Ya makes your choice and takes you chances.

Sixteen months now, and I haven't had a relapse (yet) . . . I was fairly consistently having one every three months prior to starting on LDN.

I am one of the lucky one's that has seen considerable symptom improvement, but am mostly happy because I realized a reduction in my EDSS score, and have had no progression since starting on LDN.

I've had RRMS for 15+ yrs.

Cherie

Lucky you Cherie, pleased to hear it

Thanks AGR . . . nice to see you again!

Cherie