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Old 09-21-2009, 04:28 PM #11
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Don't believe what people say or think. Even GCPs are wrong sometimes and have pre-conceived notions about MS
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Old 09-21-2009, 05:21 PM #12
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Quote:
Originally Posted by Dejibo View Post
you have gotten some great advice here. NO ONE can predict the course of YOUR MS. its so different for each of us. Some of us ride the mild lane for the rest of our lives, and others skip over to the SPMS lane. its not in our control.

What IS in our control is how we react to it. We can eat right, exercise, take good mental health care of ourselves. Be good to ourselves, and our families. Try to not let it get you into a corner of depression or worry. Come here and vent, or ask questions.

Sorry you had to find us this way, but welcome to the club house. Did anyone teach you the secret handshake?
Thanks for the support. and no i dont know the secret handshake
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Old 09-21-2009, 05:44 PM #13
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Well my lil Kentucky Gal you listen to Momma...all these people here with MS were probably told the same thing that white coated thinks he know it all told you. You might have worse to come and you might not. My first Neuro told me that I would be in a wheelchair in a few years.

That was over eight years ago and I'm still walking...not that sexy make a man look twice walk, but still walking.lol As others have posted, MS effects each of us differently, and most of us the same. It is good you know what it is and you start taking care of you and finding meds that work for you.

I know its scary right now, I know you are concerned about your future and that of your sweet baby...but things will be ok. You need to know that it will be ok, you might have to adjust a few things here and there. We all make adjustments through out our lives, we make adjustments to a new job, new house, new car, new husband, etc. You get the picture, this is one more adjustment...it is not going to be easy, but then...

THAT'S WHY WE ARE ALL HERE JUST FOR YOU. Some one will hopefully answer your concerns or just listen to fears, we've been where you are and we know exactly how it feels. We are a unique club, we are given this illness because we are strong, not everybody can do what we do everyday...live each day as it presents itself, good or bad.

So sending you plenty of
I would send your neuro a good smack for being so insensitive, but the effect isn't the same unless he can actually feel my hand.
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Old 09-21-2009, 06:57 PM #14
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Be very aware that people are going to say all kinds of things to you. Educate yourself and disregard all those people who "know somebody with MS" or whatever. I've had some whoppers said to me and I know exactly how those comments can bring you down. Take one day at a time and enjoy the baby. These precious baby years will go by so fast!!!
My brother in law has had MS for 22 years and is still working and feeling good. Hind sight is 20/20 so we can now say he has a mild form of the disease. Only many years from now will you be able to say how MS affected you and only you.
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Old 09-21-2009, 11:20 PM #15
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Just wanted to add my HELLO and WELCOME, wildchild! I'm sorry you have to be here, but under the circumstances, it's a great place to be. As everyone has said before, we're all different and your life with MS will probably be different yet. Read all you can to understand the "possibilities", don't pay attention to the many "a friend of my aunt's cousin" ms stories that will come along.

Enjoy that little one and make the most of each day. I'm at the grandmother stage now and wonder how did that happen, all the time. You'll feel less like a zombie from lack of sleep soon too!!

Hope to get to know you better and all the best.
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Old 09-22-2009, 12:32 AM #16
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Darn that doctor for saying that. This disease isn't too bad for lots of people, in fact, it can be quite mild. The person that said that is probably stuck in the early 1980's or so when treatments and research were limited. You really can control the course of the disease to some extent by following a healthly lifestyle with diet, exercise and stress reduction.

Enjoy that baby and stick around if you have more questions or need support.
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Old 09-22-2009, 02:37 AM #17
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[QUOTE=ewizabeth;569219]Darn that doctor for saying that. This disease isn't too bad for lots of people, in fact, it can be quite mild. The person that said that is probably stuck in the early 1980's or so when treatments and research were limited. You really can control the course of the disease to some extent by following a healthly lifestyle with diet, exercise and stress reduction.

Enjoy that baby and stick around if you have more questions or need support. [/QUOTE

Thank all of you for your words. I do have another quesstion though. The thing that sent me to the hospital was a seziur and it was my first one and the drs didnt know what caused it so they did a spinal tap and an MRI and they told me that the spinal tap showed that i have ms and i went to an ms specialest and he told me that the spinal tap results was neg for ms. but the MRI showed leasions that showed i had ms has this happened to anyone else.
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Old 09-22-2009, 08:31 AM #18
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Quote:
Originally Posted by kentucky_wildchild View Post

Thank all of you for your words. I do have another quesstion though. The thing that sent me to the hospital was a seziur and it was my first one and the drs didnt know what caused it so they did a spinal tap and an MRI and they told me that the spinal tap showed that i have ms and i went to an ms specialest and he told me that the spinal tap results was neg for ms. but the MRI showed leasions that showed i had ms has this happened to anyone else.


My spinal was inconclusive. It took ruling stuff out and changes in leison load on the MRI to get my diagnosis (dx). Even with the common MS leison type known as "Dawson's Fingers" in my brain, they followed the "McDonald Critera" for the dx. (Gotta love these names! Now I want a hashbrown! )

My first "could not be ignored any longer" symptom that landed me on the DX path was essential tremors on my right side. Made writing, eating and driving fun. Luckily that went away and has been the only symptom to fully remit so far.

Hope this helped. Take care of yourself.
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Old 09-22-2009, 08:57 AM #19
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[/QUOTEThank all of you for your words. I do have another quesstion though. The thing that sent me to the hospital was a seziur and it was my first one and the drs didnt know what caused it so they did a spinal tap and an MRI and they told me that the spinal tap showed that i have ms and i went to an ms specialest and he told me that the spinal tap results was neg for ms. but the MRI showed leasions that showed i had ms has this happened to anyone else.[/QUOTE]

You are a case in point

Each symptom is different for everyone. And then, the severity of each symptom is different as well.

Then you can add the different doctors and the various tests that they will run (or not).

I strongly suggest to you that you find a neurologist that is well versed in MS and all that implies.

Once you find that doctor, work together to treat *your* MS.

For me... during my 6-month visits to my neuro., we go through the normal muscle strength tests. I always laugh at that.

The reason is this:

During my first appt. with him, we started with the "grab my fingers and squeeze as hard as you can" exercise.

When I did that, his eyes went wide with noticeable pain.

That was about 6 years ago. We still go through that, but I now ask before: "are you ready?" He takes a deep breath and then nods okay.

Muscle weakness is not a symptom I have. I hope never to have.


I wish you well!!!

Niko
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Old 09-22-2009, 11:18 AM #20
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You are a case in point

Each symptom is different for everyone. And then, the severity of each symptom is different as well.

Then you can add the different doctors and the various tests that they will run (or not).

I strongly suggest to you that you find a neurologist that is well versed in MS and all that implies.

Once you find that doctor, work together to treat *your* MS.

For me... during my 6-month visits to my neuro., we go through the normal muscle strength tests. I always laugh at that.

The reason is this:

During my first appt. with him, we started with the "grab my fingers and squeeze as hard as you can" exercise.

When I did that, his eyes went wide with noticeable pain.

That was about 6 years ago. We still go through that, but I now ask before: "are you ready?" He takes a deep breath and then nods okay.

Muscle weakness is not a symptom I have. I hope never to have.


I wish you well!!!

Niko[/QUOTE]

Well i do have muscle weakness on my left side and when i was in the hospital my whole left side went numb and ever since then it has not been the same and sometimes it gets to where i cant lift anything with my left arm and my left leg hurts when i walk so i guess that is part of the ms. i havent been to my dr for about seven months he wants me to go though another spinal tap and mri i dont want to go though all of that but i know i have to, but i'm scared.
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