Tx - thanks for the advice.

I saw the neuro today, and she pretty much sais she doesn't know what it is, and having had 2 clear MRI's ( brain MRI back in May and one spine MRI at end of August) and clear VER that it would be rare for it to be MS.

She didn't ask about new sx. I told her, but she didn't note them down or ask anything more.
She said if I have more sx that get worse (they're pretty good now) then to go back and see her. But she said there's no point doing another MRI until late January otherwise.

She mentioned coeliac disease? i don't have bad stomach pain though? Could this be an option?? I didn't think it presented neurologically.

She also mentioned a second opinion later on if she couldn't find anything which I thought was interesting......

Don't be surprised about her suggesting another opinion - I think that's the sign of a good doc. My best doc said the same thing. That doesn't mean you have to switch docs, just see another to see what they say and stay with this one.

Think about what she said about celiac too, at least to get it ruled out. I never thought I had lupus or lymes, but was tested a couple times for both, just to be sure.

The more things you know you don't have, the shorter the *might have* list gets.

and for the friends who need a name tell them with a straight face that you have:
a neurological disorder/are being seen by a neurologist and will tell the more details about it in the future when you are ready (and actually have the solid diagnosis). If they press, just look them dead in the eye and say it is private - shuts them up everytime!

It is the truth and has worked for me - especially to get the "my friend Sally's aunt sees a great ..."

hang in there!