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10-04-2009, 08:45 PM | #1 | ||
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New Member
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Thanks for the warm welcome guys and the advice
I'll leave it a while longer and see what, if any, changes come about. Wierdest thing is that if I play sport/ train hard in the gym the symptoms actually disappear for an hour or so. Getting hot and bothered offers me complete relief temporarily..... sitting still makes me more sensitive to it Nerves are crazy things |
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"Thanks for this!" says: | SallyC (10-04-2009) |
10-04-2009, 11:45 PM | #2 | |||
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Grand Magnate
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Hi Mick,
Basically that was a Transverse Myelitis attack, which can be caused by MS, or any number of reasons (including idiopathic). http://www.ninds.nih.gov/disorders/t...s.htm#41903234 That was how my first attack went too, only it went as high as my chest, and was very severe. (There are different severities, depending on the amount of inflammation that goes on at the time, and how much of the spinal cord gets in on the "party"). My second attack like that wasn't for 12 yrs, and it was at that point that I allowed them to do a MRI. This time the complete numbness went to almost my neck, and included my hands, top of my head, ears, etc. The escalation (changes/increase in symptoms) will generally last about 4 - 6 weeks, then we go through a recovery phase for the next 4 - 6 weeks. You can continue to improve after that (for up to two years, actually), but that was when the BULK of my recovery happened. Ultimately, you may be left with some amount of permanent damage. The only symptom I had 18 months after the first attack, was numbness when I walked any distance, and less endurance for leg exercises. The second time I wasn't quite as luck though .... I don't think the buzzing indicates that you are healing, per se'. The buzzing can actually be something that comes early on in one of these attacks (it did for me) and we can be permanently left with, like any of the symptoms .... BUT you have not fully healed, so I wouldn't worry about that yet. Cherie
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10-09-2009, 10:14 PM | #3 | ||
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New Member
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Quote:
And thanks to other responders too |
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10-05-2009, 06:30 AM | #4 | |||
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Magnate
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Quote:
There is no normal, keep that in mind. I do not do well with physical activity, especially where lifting is involved. But most of my symptoms do better when I'm warm - which is oposite of how most people are. We all have our own new norms, and they change all the time. The change thingy is the hard part, I think.
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10-05-2009, 09:18 AM | #5 | |||
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Wise Elder
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Hi Mick! Welcome!
I have lesions between T4 and T9. My 1st major attack took about a year to get most of the function back in my left leg. 3 years later, I still have weakness in both legs but only if I over do it and coordination issues and sensory issues - these may be more related to brain lesions than spinal. I now know I will always have this and it is permanent. Similar to Lady Express, it takes me a good 4 to 8 weeks to start feeling better after a spinal flare. There is not much you can do but rest and wait it out. Give yourself some time. I hope you start feeling better soon. Check in and let us know how you are doing. |
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10-05-2009, 10:03 AM | #6 | |||
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Wisest Elder Ever
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Hi Mick and welcome to NeuroTalk!
I have permanent nerve damage in my right arm & hand. It's taken about two years to get the use of my hand back. At first it was completely useless. I couldn't do anything with it. Now, even though it's still numb, I have use of it....although limited and it's very weak. I've gotten used to my "new normal" and it doesn't bother me as much as it did in the beginning.
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"Thanks for this!" says: | SallyC (10-05-2009) |
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