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#1 | |||
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Member
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Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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#2 | |||
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Wisest Elder Ever
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Thank you for this post. I am going to add this info to our B12 thread at PN, if you don't mind.
There is much more info at their website: http://www.emisphere.com/oral_vitamin_b12.html But it is unclear to me at this time if this is methyl or cyano version. I would also expect it to cost more money in the long run. This technology may be helpful for other drugs, that rely only on injection, eventually.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | DizzyLizzy (10-31-2009) |
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#3 | |||
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Grand Magnate
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I'ne never had a neuro look at Vit. B12 or Vit D, ask about sex or constipation but tharts just my experience at Johns Hopkins and UM Medical MS Center.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | DizzyLizzy (10-31-2009) |
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#4 | |||
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Senior Member
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Just so you know. I just had a blood test run for Osteoperosis. I have ample amounts of B12 (I like broccoli) and Vitamin D.
I have PPMS and I am clearly progressing. ![]() |
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"Thanks for this!" says: | DizzyLizzy (10-31-2009) |
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#5 | |||
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Wisest Elder Ever
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Quote:
Your B12 should be at 500 or above to be normal. Broccoli does not have B12 in it, but it does have folic acid. http://www.nutritiondata.com/facts/v...roducts/2816/2 B12 comes from animal sourced foods. It can become low if patients take daily acid reducing drugs, long term antibiotics like used for Lyme disease, or metformin for type II diabetes. That's great that you have good Vit D levels. Most people do not. Many lab ranges still reported in the US use antiquated levels of B12 going down to 200 as normal. People can have many neuro symptoms at levels in the 200's.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | DizzyLizzy (10-31-2009) |
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#6 | |||
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Senior Member
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Hi MrsD
Yes my PCP gave me the numbers. I was recently diagnosed with Osteoperosis so I had a blood work panel done. My PCP's husband has MS so I feel confident that she was reading my chart correctly. At least I HOPE so! ![]() There are lots of ways to get one's vitamins. I was being a bit "flip" when I mentioned eating a lot of broccoli. ![]() |
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"Thanks for this!" says: | DizzyLizzy (10-31-2009), mrsD (10-10-2009) |
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