advertisement
Reply
 
Thread Tools Display Modes
Old 10-15-2009, 02:53 PM #1
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default New MS Drug Fampridine-SR Oct-15-09

http://phoenix.corporate-ir.net/phoe...074&highlight=

It's not out yet but lets hope it's a great one.
I'm 99% complete C6-C7 spinal cord injury + M.S.

Meanwhile I'll still wish for Interferon Alfa-n3 & estriol back on market.
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (10-16-2009), SallyC (10-17-2009)
Old 10-16-2009, 12:10 AM #2
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Thanks Edife,
I wonder what the cost will be? Even oral drugs seem to cost the same as the injectables. I hope it gets out of the pipeline and onto the market place.

We need more choices other than injecting or infusion.

BTW,
Quote:
Meanwhile I'll still wish for Interferon Alfa-n3 & estriol back on market
What is this drug, please?

PS: isn't 4-AP an older drug? Or do I have it mixed up with another?
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (10-17-2009)
Old 10-17-2009, 08:00 AM #3
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Fampradine is 4-AP and available from a compounding Pharmacy (they make it in tab. form )and 4-AP does have a shelf life and older 4-AP may be less strong so try to go with recommended pharmacy. Although not yet FDA approved, it is available with a doctor's prescription. I have tried it (live in Maryland, got from recommened pharmacy in AZ from a Pharmacist friend knows.) I am in a chair, PPMS - did not help me but I knew it probably would not (my sit.- going in.) Was inexpensive as it is now generic , Can possibly have side effects (like everything!) and worth investigating. Talk to your neuro. Like Interferons and other CRABS it has@@@@33% success rate I think. May be right for you. Never know until ypu try. Have heard yes and nopes about it, like everything. Internet has info - use generic name to look up.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (10-17-2009)
Old 10-17-2009, 08:06 AM #4
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

I want to try Fingolimod (company - Novartus- Switzerland based) which has completed Stage three Clinical trials, FDA likes, some success (RR and some PP), hear/hope to see it 2010 or so on Market. I'll try anything. Hey, you never know. While your neuro can be an exceelent source of info, keep yourself updated on stuff as we have a personal, more self-driven need)
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (10-17-2009)
Old 10-21-2009, 05:23 PM #5
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default

Tomorrow, October 22 2009, the FDA will say Yes - No - or continue Trials.
I did't read the other post about 25' walks. I didnt see a co. or drug name so I didnt read it.
This drug WAS tested with 25' walk times and improved but I didnt get hard #'s.

Lets hope it gets the green light. Give it 6-8 weeks if it happens. I'll research it more if approved.


edit - I just read 25' walk post and see this drug is what he's talking about.
antibiotic - 2 days ago I got script for Minocycline which was studied with Copaxone and helped. I'll take all 3 maybe?
EddieF is offline   Reply With QuoteReply With Quote
Old 10-22-2009, 07:47 AM #6
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

You can get the Generic form of Fampridine (4-AP) with a physican's prescription and finding a RELIABLE compounding pharmacy. While not FDA approved for MS use, it is available. For some it helps apparently, for others (Me), it doesn't. Goodluck!!
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Improved 25-Foot Walks on Antibiotics (third walk added) - Better than Fampridine notasperfectasyou Multiple Sclerosis 0 08-28-2009 09:18 AM
Fampridine Video from WSJ tovaxin_lab_rat Multiple Sclerosis 7 05-28-2008 12:45 AM
"...pricing drugs...not on how much drug costs to develop, but...benefit drug brings Stitcher Parkinson's Disease 2 06-03-2007 02:37 PM
Positive Results of Phase 3 Study of Fampridine-SR on walking wannabe Multiple Sclerosis 3 09-29-2006 03:49 PM


All times are GMT -5. The time now is 06:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.