NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Tysabri...it's my last option. (https://www.neurotalk.org/multiple-sclerosis/106056-tysabri-option.html)

ewizabeth 10-20-2009 08:47 AM

Welcome to NT msozwoman. :welcome_sign: It's an awesome place with some great folks. Pull up a chair and stay awhile. :)

legzzalot 10-21-2009 06:23 AM

Insurance company better get off their high horse and approve the TY very soon...Like in the next day or two. Because I am about to call the neuro and make her very unhappy.

Did my Avonex last night (which I put off from Sat until after I spoke to doc). Normally do it during the day but honestly was trying to forget about it when DH2B offered to stick me in the arm. (And by offered, I mean threatened to handcuff me to a chair and stick me anyway, so I can choose the easy way or his way). And then....

Broke out in hives again on my legs around midnight. . . Then woke up at 4 am with the flu like yuck! I am so done with this drug! And it was my last dose, I am at this point saying I am not willing to pay for yet another shipment and I am not willing to subject my body to this any longer. I get that she wants me on a DMD until the TY gets approved; but we already know that said DMD is not working for me, she is taking me off of it for this reason.

So I will call her today. Wish me luck.

barb02 10-21-2009 08:47 AM

Good luck! Your neuro cannot make you take a drug you are not willing to take. It sounds as if you have given it "the good college try."

SallyC 10-21-2009 10:42 AM

Aren't you supposed to be off the other DMDs, for a time, before starting TY?

legzzalot 10-21-2009 12:49 PM

Quote:

Originally Posted by SallyC (Post 580776)
Aren't you supposed to be off the other DMDs, for a time, before starting TY?

A month...but she wanted me to stay on the Av until the uns approved the ty. Which makes no sense bc it is not working.

SallyC 10-21-2009 01:03 PM

Quote:

Originally Posted by legzzalot (Post 580842)
A month...but she wanted me to stay on the Av until the uns approved the ty. Which makes no sense bc it is not working.

It's also causing you hives and yucky flu....DROP IT, like a hot potato..:mad:

ewizabeth 10-21-2009 01:10 PM

Quote:

Originally Posted by SallyC (Post 580859)
It's also causing you hives and yucky flu....DROP IT, like a hot potato..:mad:


I agree! It could be making you worse since you're having a bad reaction. You should be off of it for a month or two before the Tysabri I think.

I hope you'll get spectacular results from Tysabri. :hug:


All times are GMT -5. The time now is 03:16 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.