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#1 | |||
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Member
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http://phoenix.corporate-ir.net/phoe...074&highlight=
It's not out yet but lets hope it's a great one. I'm 99% complete C6-C7 spinal cord injury + M.S. Meanwhile I'll still wish for Interferon Alfa-n3 & estriol back on market. |
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#2 | |||
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Senior Member
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Thanks Edife,
I wonder what the cost will be? Even oral drugs seem to cost the same as the injectables. I hope it gets out of the pipeline and onto the market place. We need more choices other than injecting or infusion. ![]() BTW, Quote:
PS: isn't 4-AP an older drug? Or do I have it mixed up with another?
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | SallyC (10-17-2009) |
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#3 | |||
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Grand Magnate
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Fampradine is 4-AP and available from a compounding Pharmacy (they make it in tab. form )and 4-AP does have a shelf life and older 4-AP may be less strong so try to go with recommended pharmacy. Although not yet FDA approved, it is available with a doctor's prescription. I have tried it (live in Maryland, got from recommened pharmacy in AZ from a Pharmacist friend knows.) I am in a chair, PPMS - did not help me but I knew it probably would not (my sit.- going in.) Was inexpensive as it is now generic , Can possibly have side effects (like everything!) and worth investigating. Talk to your neuro. Like Interferons and other CRABS it has@@@@33% success rate I think. May be right for you. Never know until ypu try. Have heard yes and nopes about it, like everything. Internet has info - use generic name to look up.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | SallyC (10-17-2009) |
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#4 | |||
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Grand Magnate
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I want to try Fingolimod (company - Novartus- Switzerland based) which has completed Stage three Clinical trials, FDA likes, some success (RR and some PP), hear/hope to see it 2010 or so on Market. I'll try anything. Hey, you never know. While your neuro can be an exceelent source of info, keep yourself updated on stuff as we have a personal, more self-driven need)
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | SallyC (10-17-2009) |
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#5 | |||
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Member
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Tomorrow, October 22 2009, the FDA will say Yes - No - or continue Trials.
I did't read the other post about 25' walks. I didnt see a co. or drug name so I didnt read it. This drug WAS tested with 25' walk times and improved but I didnt get hard #'s. Lets hope it gets the green light. Give it 6-8 weeks if it happens. I'll research it more if approved. edit - I just read 25' walk post and see this drug is what he's talking about. antibiotic - 2 days ago I got script for Minocycline which was studied with Copaxone and helped. I'll take all 3 maybe? |
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#6 | |||
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Grand Magnate
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You can get the Generic form of Fampridine (4-AP) with a physican's prescription and finding a RELIABLE compounding pharmacy. While not FDA approved for MS use, it is available. For some it helps apparently, for others (Me), it doesn't. Goodluck!!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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