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10-26-2009, 01:26 PM
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Member
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A few months back I was asked if I were interested in being in this study. They are testing 10,000 MS patients blood for gene study research. It does not matter the type, level of disability; the only requirement is you have a definite MS diagnosis.
I was recently contacted and asked if I were still interested in the study. They are sending me the kit and postage paid return box. This will cost me nothing or cost my insurance anything. I can go right here in town to have my blood drawn. I will not be told my results but instead the groups results. I was also told when they called 50 to 100 genes are involved where MS is concerned. I get my blood work done tomorrow (Tuesday  ) morning. Already called Fed Express for a Priority Overnight pickup tomorrow afternoon. Needed to explain there was blood in the package and it's being mailed in accordance with the law.Aside from my 2 neuro's at Pittsburgh's MS Clinic and also releasing my neuro's records from the doctor I saw in Baltimore at Johns Hopkins. Too, released are my Outpatient Clinic Records, Progress Notes, Consultations, History & Physical Exams, Medical information related to my illness, Radiology Reports, Radiology Images, Diagnostic Imaging Reports, Laboratory Reports and Discharge Summaries. I hope Dr. Hauser is able to get to the bottom of this MS puzzle. This is through the University of CA, San Fransisco Multiple Sclerosis Susceptibility Project Sponsor/Funding: NIH/NMSS/Nancy Davis Foundation |
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10-26-2009, 02:20 PM
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Grand Magnate
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Cool!
I am one of those 10,000 patients.
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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10-26-2009, 06:58 PM
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Magnate
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I signed on for this awhile ago. I'll be waiting for their call now!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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10-29-2009, 10:56 AM
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Member
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I'm in this too. I was under the understanding that I would get a letter when the study was over, but I would not receive any info on what my blood showed them. Only what the 10,000 had in common.
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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| "Thanks for this!" says: | 0357 (10-29-2009) |
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10-29-2009, 11:15 AM
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Grand Magnate
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I did this, well I tried, Could not give enough blood before vein collapsed, but I tried!!!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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| "Thanks for this!" says: | 0357 (10-29-2009) |
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