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Old 10-30-2009, 07:32 AM #11
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Hello Darren and Welcome to NeuroTalk! It's so wonderful hearing from a son who is so concerned and involved in his Mum's condition and care. Of course I'm sorry she has MS, it's a miserable disease. I am now secondary progressive and use a powerchair all the time, like kicker, but remember how terrifying it was to be falling all the time. My neurologist said my balance center was damaged by the MS so if this is the case with your Mum, I don't think a chiropractor would be of help. I'm NOT a physician, just passing on personal information.

I've been on LDN for a few years and although there hasn't been a major improvement in walking, etc., my doctor is convinced it has kept the MS at bay and slowed down progression. Even though you don't see improvement, perhaps it's still helping. If I don't take it for a few days, there's a definite worsening of bladder problems and over-all weakness. It's worth taking a daily pill just for those reasons until something better comes along!!
Please ask away, there are many friendly, helpful people here! Perhaps your Mom would like to join us when she gets home again?!

Wishing you and your family all the best.
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Old 10-30-2009, 09:36 AM #12
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Many thanks for the kind words Judy.

My mum doesnt seem to let it get to her - she never moans but I guess thats what mums are like!

She does also take a daily water pill and also uses pads (but seems to use them at an alarming rate!) Your right about it could be worse without the LDN though, so she will continue to use it.

When they get back from holiday I will get her to try Baclofen and maybe see a specialist physio.

Thanks for the warm welcome - My mum doesnt know I have posted on here, not that should woud mind. Oh and she wouldnt even know how to turn a PC on! But I will pass on all your kind welcomes and comments - she will really appreciate it!
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Old 10-31-2009, 12:58 PM #13
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Hi and welcome,
No words of wisdom just wanted you to know that you aren't alone. Jules
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Old 11-05-2009, 04:05 PM #14
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hello and welcome to NT.
how nice that you are posting on behalf of your mum.

i agree that PT might be helpful; to help with balance and leg strengthening.
is her dr aware that she is having so many problems, and is falling?
seems like a good time to reevaluate her situation.

maybe the LDN isn't working.
i'm ppms from rrms and have been on Copaxone for 6 yrs. i'm fairly stable and still walking with aids.

hope to hear more about you and see how your family is doing.
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Old 11-09-2009, 04:21 AM #15
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Quote:
Originally Posted by NurseNancy View Post
hello and welcome to NT.
how nice that you are posting on behalf of your mum.

i agree that PT might be helpful; to help with balance and leg strengthening.
is her dr aware that she is having so many problems, and is falling?
seems like a good time to reevaluate her situation.

maybe the LDN isn't working.
i'm ppms from rrms and have been on Copaxone for 6 yrs. i'm fairly stable and still walking with aids.

hope to hear more about you and see how your family is doing.
Thanks for the kind words.

Im not sure the last time she went to her doctor, but they should be aware of her problems when walking. I will make sure she goes back to her Dr but they have been pretty much useless so far in helping. A lot of the drugs I have read about online they havent even heard of.
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