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Old 11-05-2009, 03:47 PM #11
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NurseNancy NurseNancy is offline
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NurseNancy NurseNancy is offline
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i agree too. a 2nd opinion would be a good move.
you seem to have a good handle on your conditions.
keep a sx journal. it's helpful to see what's happening over time.

and, start keeping copies of your files; dr visits, mri's, lab results.
if you see other drs it's a good idea to have your records.
and, if you ever apply for ssdi you'll need your records.

good luck. please keep us posted.
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Old 11-05-2009, 03:49 PM #12
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Wow, bummer on top of bummers. What are they doing about the cyst? or is that not really a problem? I find it odd and interesting that you had NO sx at all before your accident? Not even in retrospect? (Looking back, I had MS-type sx for 3-5 years or more before my dx, but put them down to my chronic depression, menopause, aging, etc.) How did the accident happen? Was there a dizzy episode?

My assumption is you landed on cement or similar. What kind of research have you done re head trauma injuries? Have you seen a specialist in that area? Though the lesions rule out head trauma as the total cause of your sx, I would guess some of your sx may be related to the concussion and could be very slow to recover. I don't know much about head trauma, but I'd be researching that as well.

I hope you start improving soon, even if you don't get a definitive dx for some time. You know, of course, some here have waited months or years for a dx one way or another of MS. I know it ain't easy, but I'd concentrate on doing what I could to move around better and not so much on the cause of it all. Stress will send MS symptoms into high gear. Relaxation is truly key.
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