[Debbie D]

I wonder if I've asked this before...
well anyway...the last time I saw my neuro in Sept., I brought a page-long list of sxs I had experienced over the previous 3 months.
At the end of the appt., he said, "Call if you have things going on...I don't want you to wait and bring a long list."
So, I try to fight through the sxs the way I did with my old neuro.
Question: am I supposed to call when I get a major problem of spasms kicking in again, or extreme fatigue, etc?
I don't want to be a hypochondriac. But I am unsure of when I need to give him a heads up.

[legzzalot]

I have a 48 hour rule. IF the new or worsening sx last more than 48 hours and I cannot find an explaination (Like a cold) for them then I call. But I also know that 9 times out of 10 there is nothi they can do for it. So I leave a note with the nurse...who leaves a note for the doc so that it goes in my file. If it is something that can be treated the doc will call me and ask if I want to try (Insert Random Medication here).

Most of the time, it is handled by phone with either the nurse or the doc. But there have been a few times where the doc has called and said "I need to see you!". But she also knows I am not a fan of conventional medicine, and I hate taking pills. So she knows that I will not take them unless it is really bad.

WOW that was a little long winded simple answer: if it lasts more than a day call your doc.

[Erin524]

I think if it involves pain, or interferes a lot with your daily life, calling the neuro might be a good idea.

I was trying to live with the numbness in my left hand when it started, and made it about a week or two before I called the neuro and told him how painful it was and he called me in a Rx for prednisone. This was after seeing another neuro at his office (because my regular neuro was out of the office that week) AND seeing my regular doctor because I was also having problems with tendinitis in my elbows.

[ewizabeth]

You need to call him Deb. He won't mind! He has gotten a bit disappointed in me in the past when I casually told him about new symptoms at a regular check-up, and say they've been going on for a month or two. (And I've done that several times.)

I hope that whatever it is, it will be better soon, my friend.

[SallyC]

Call your Neuro, that's why he gets paid the big bucks.

Feel better soon.

[Debbie D]

You know, I really, really wish there was a hug button where the thank you button is...because when I read of your helpful and supportive suggestions, I just want to hug you all!!
I WILL call tomorrow...I am almost in tears (ok, I am teary) with the pain of the leg spasms tonight. My shins feel as if my muscles are going to tear my shin bones apart in front of my lower legs...I have increased the zanaflex, but it's not helping.
I am so so tired of this disease. I can't fully function. And I don't have severe sxs like so many do. I'm not in a wheelchair. I'm not in an electric scooter. I refuse to use a cane. But I am either in a lot of pain, or so tired, or wetting myself so often during the day that I just want to sleep. Constantly. For the rest of my life.
Sorry for the pity party. I just want to be normal again
Thanks again, all...

[dmplaura]

Feel better soon sweetie, here's one for you

It's a crappy disease you got that right, but you'll get through this.