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Old 11-08-2009, 07:00 PM #1
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Default CCSVI-I can't help but think that there actually my be something to this!

I know that this has been posted on here before but I never actually read everything about it until now.

zapalicious posted back in June: http://neurotalk.psychcentral.com/sh...ighlight=CCSVI

Someone recently asked me for my thoughts about this and I decided to look into it a bit. I went and read every darned link out there. I probably need to absorb it more, and I will. For me this means re-reading everything again, following up on all the scientific stuff, anatomical stuff, medical terminology, asking questions to every person in and out of my family who is a healthcare provider that I know, and just immersing myself in it until I am sure I have it in my head, sort of like I did with Tysabri when it was prescribed to me back in 2005.

I know that we have been around the world on new stuff going on and that there's all sorts of theories out there and we have digested and debated them over and over. Most of the stuff that comes down, I take with a shovelful of sand, rather than a grain, but I cannot help but think they may be onto something here.

I'd welcome a sane, educated dialogue here for this procedure. We have some of the best brains on the planet right here. If we put them together maybe we can make some sense of it, pros and cons, for people who are interested in this procedure. I'm not interested in bashers, new people coming in and shoving stuff down our throats and argument, just an open room forum to discuss it.

Anyone for a swim? Pool's OPEN!
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Old 11-08-2009, 07:19 PM #2
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Immma gonna have to look it up and mull it over in mah wittle brain.....be right back...
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Old 11-08-2009, 08:00 PM #3
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The findings for this Italian research are supposed to be published this month. I am eagerly waiting to read it when it is available.

gmi
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Old 11-08-2009, 08:08 PM #4
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hmmm...I will have to do some research...what's the temp of the pool water? Not. too hot, I hope
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Old 11-08-2009, 08:43 PM #5
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RW - I'll have to do some more reading up on this. I do find it interesting both this thread and your "Real-Time Observation . . ." thread have to do with the vascular system. Are the T-cells the "obstruction" they are describing in the CCSVI article? After reading your other post, I did wonder about some sort of blockage - kind of like blood clots/strokes. Then to see this post, now I am really starting to wonder . . .I'll do some reading and try to write a more intelligent response.
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Old 11-08-2009, 08:53 PM #6
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Well, from the little I've read about it... it makes sense in a way. We know that patients respond well to a heart healthy diet like the Swank diet. Anybody responds well to a heart healthy diet because it's good for you.

If you take fish oil, it can make you feel better. Doesn't it help circulation as well?

So if you do something to improve circulation in a certain spot, wouldn't it follow along those lines?

When I eat healthy, I feel a lot better, MS wise. That's my totally off the cuff view for now.
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Old 11-23-2009, 05:17 PM #7
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Thumbs up CCSVI in Multiple Sclerosis

Just joined Neuro Talk. I find this CCSVI discovery amazing. Is there suggested methods towards fast tracking this procedure?
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Old 11-23-2009, 07:02 PM #8
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Quote:
Originally Posted by Kazzman View Post
Just joined Neuro Talk. I find this CCSVI discovery amazing. Is there suggested methods towards fast tracking this procedure?
If you find them, let me know! I called my GP today and made an appointment, but the secretary said that to see a vascular doc will require referral. I'm not sure the waiting list here for vascular specialists.

Won't see my GP till Dec. 18 as it is.. I may call offices of vascular doctors regardless of GP and run it by several secretaries.

I'm skipping my neuro on this and letting HIM call me if he catches on, since my last words in his office were "contact me if there's a big breakthrough or orals become available". We'll give him time though

Welcome to Neurotalk Kazzman, nice to meet you
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Old 11-23-2009, 07:25 PM #9
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Quote:
Originally Posted by Kazzman View Post
Just joined Neuro Talk. I find this CCSVI discovery amazing. Is there suggested methods towards fast tracking this procedure?
Welcome to NT Kazzman!

Not sure about the fast tracking. I would think the pharmaceutical companies would put up a pretty good fight against that since they may lose lots of $$$$'s. Sadly, it's not about the patient.
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Old 06-30-2010, 07:23 PM #10
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http://www.nytimes.com/2010/06/29/he....html?emc=eta1
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