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11-17-2009, 03:35 PM | #1 | |||
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Magnate
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And now that all of my friends and family are freaking out on me and telling me how much they don't want me to start this drug....
But I am determined to be optimistic! Monday is the day. Any advice I should know? Things they don't tell ya?
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11-17-2009, 04:55 PM | #2 | |||
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Elder
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Hooray Legzz! I hope you'll get good results from Tysabri. Your friends and family shouldn't worry, most of the PML cases happened after about 24 infusions. Between now and then, there will very likely be a better alternative for you to take.
Make sure you're well hydrated by drinking plenty of water. Expect to rest afterward, because you might get tired after the infusion.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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11-17-2009, 04:59 PM | #3 | |||
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Grand Magnate
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good for you legzz.
i hope T helps you. please keep us posted on how you're feeling.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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11-17-2009, 05:12 PM | #4 | |||
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Magnate
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What Wiz said!
Relax, hydrate, and rest afterwards. Bring something to keep you busy during the infusion and the wait afterwards, or catch up on your sleep! Let us know how it goes.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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11-17-2009, 08:39 PM | #5 | |||
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In Remembrance
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Are they doing any prelimitary testing for JV or other factors now?
I hope it helps you. Legzz..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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11-18-2009, 02:06 AM | #6 | ||
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Senior Member
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I applaud your determination to find something that will help. Wishing you wonderful results!
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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11-18-2009, 04:11 AM | #7 | |||
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Magnate
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No clue. I know there will be bloodwork. I was told to expect to be there for at least 3 hours. They have determined I need a slow drip since my veins like to explode. On the plus side... Because it is done in the hospital, ins should cover it at 100% with no copay since I have already reached me deductible.
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"Thanks for this!" says: | dmplaura (11-20-2009), ewizabeth (11-18-2009), NurseNancy (11-23-2009), Riverwild (11-18-2009), SallyC (11-18-2009) |
11-18-2009, 09:59 AM | #8 | |||
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Grand Magnate
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Welcome to the club, legzz! I hope Ty works as well for you as it has for so many others. Let us know how it goes!
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11-18-2009, 08:10 PM | #9 | |||
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Member
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Hi Legzz -- Wish you the best on Tysabri. I have nothing new to add -- everyone else has the right advice!!
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On Tysabri and love it. . |
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11-23-2009, 10:05 AM | #10 | |||
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Grand Magnate
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Just wanted to bop in and wish you the best of luck today, leggz! Let us know how it goes ...
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"Thanks for this!" says: | SallyC (11-23-2009) |
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