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01-27-2016, 12:02 PM | #201 | |||
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Grand Magnate
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My Neuro at Johns Hopkins is back!!!!!! Haven't seen him in almost 2 years, went to his replacement, called to make my annual appointment. She's gone, he's back seeing him in May. In a plateau, it's almost 2 years and nothing to say! This is good.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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01-27-2016, 12:06 PM | #202 | |||
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Grand Magnate
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In and out appointment but sure like keeping a connection. Thinking of a new wheelchair so may need a doctor around when I tell health insurance company.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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02-15-2016, 02:16 PM | #203 | ||
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Newly Joined
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I am new to this blog. I am one of those rare people that only have lesions in spine and have doubled in 9 months. My physician is surprised I am walking. I am increasingly numb in BLE but the only thing that helps my relapse is plasma exchange. I go through OMRF in case there is a trial for a drug that could help, but they do not have privleges anywhere to do this treatment. anyone else have only spinal lesions ?
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"Thanks for this!" says: | Starznight (08-01-2016) |
02-16-2016, 02:13 PM | #204 | |||
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Senior Member
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I think most of my lesions are spinal. I have so many lesions in both my spine and brain that protocol is to stop counting after 15. I received a similar comment from my neurologist sometime after year five of dx in that he was surprised I was not in a wheelchair full time.
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"Thanks for this!" says: | SallyC (02-18-2016) |
02-16-2016, 05:36 PM | #205 | |||
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Grand Magnate
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Quote:
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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03-03-2016, 09:12 AM | #206 | |||
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In Remembrance
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http://acceleratedcure.org/sites/def...3.1.16.pdf.pdf
Sounds promising for PPMS. Dozen' t mention SPMS...darn it!
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-09-2016, 10:32 AM | #207 | |||
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Grand Magnate
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Sally, do you know what you did? A little ray of light shone in my MS life. I see my neurologist in May, we will discuss Ozcrelizumab ( I know I misspelled)
A little hope. I know what is is done already done but maybe this will help in not progressing furture. I just need something to halt this $%^ age progression thing!!!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | SallyC (03-10-2016) |
03-10-2016, 11:21 AM | #208 | |||
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In Remembrance
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I'm so glad I posted this for yo kicker.
I hope it works for you. If it does, I will try it too!
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-10-2016, 04:28 PM | #209 | |||
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Grand Magnate
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Side effects don't sound horrible and I think no deaths are attributed to it. The one death that occurred, when I read about it they didn't state what caused it, but did not think it was the drug.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | SallyC (03-11-2016) |
06-07-2016, 04:29 PM | #210 | |||
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Grand Magnate
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Think I hit a plateau. Doctor nods head but won't say out loud. Who knows? Carpe diem.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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