[poochie]

How on earth do you know if it is SPMS, when the neuro can't even tell you, I've been on LDN for 5 years now and I don't have anymore attacks, but I think I have progressed somewhat, I have never fully recovered from the first attack, which left me with partial paralysis, 15 years ago. It's so hard to tell about this disease.

[Judy2]

Kicker --
"Back in the day", I probably would have thought that's just not right, the elderly couple, but now I'd be a member of the club! Funny how circumstances change your whole outlook on things. Always thought it was totally unfair with men having such an advantage in that department. I never could quite master the "art" when camping, hiking, whatever, and always ended up with some wet clothing!! lol!

[kicker]

Judy,
My Dad was always saying "back in the day." Now he's gone over 8 years and I'M saying it to my kids. Circle of life and all that I guess.

[legzzalot]

Judy----> LOL. My DH2B laughs at me when we go camping because I always bring a cup for that very purpose! It's so much easier!

[Judy2]

kicker: Isn't it amazing how we turn into our parents??? Sometimes I catch myself saying something that sounds very familiar. I love it too, when my adult kids say things to their kids that I said to them. My oldest, Lori, once said "I've turned into my mother!"

I love that type of thing that shows the continuity of life. Still haven't found out who started this MS!! Bah humbug!!!

leggz: That's a great suggestion!! I never even thought about using a cup! DUH!!!! Guess I was always too busy looking for poison ivy and that good stuff!! lol! I'll have to pass it on to my daughter since they camp and go fishing alot in remote places.

[Aarcyn]

Where does it go?

I used to be able to get ready, clothes and minimum make-up in about 20 minutes or even less if I needed to get out the door.

Now, an hour is necessary. Making the bed or washing clothes are a day's event. I set a timer for being on the computer because it is distracting but it is the ability to multitask that has disappeared.

I have e-mails from long ago, never got written.

Time is elusive. I move slow, I think slower.

[SallyC]

I hear you, Cyn. The difference is, I like it that way. No hurry hurry, anymore!!

Of course, you youngsters still have fish to fry and oats to sow.

Feel better soon..

[legzzalot]

Originally Posted by Aarcyn

Where does it go?

I used to be able to get ready, clothes and minimum make-up in about 20 minutes or even less if I needed to get out the door.

Now, an hour is necessary. Time is elusive. I move slow, I think slower.

You know those little gnomes that sneak into your house in the middle of the night to steal your socks? The ones that leave the match behind just to prove they were there?

I think they have been sneaking into my house during the day stealing my minutes too! I think it is part of their gang initiation process for the new gnomes.

When I woke up at 3 am this morning, I decided to see if I could catch them in the ac...but they are just too sneaky! I decided to check my email, and wouldn't you know those little guys snuck in here undetected and stole a whole hour!?!?

[Judy2]

Gee legzzzzz......I wonder if they're a branch of the roaming gnomes? They spend time around here too. It takes forever to do the simplest things, like getting dressed. By the time that's done, dog taken care of and food made, a couple hours have gone by and I'm exhausted! Where does the time go?

[legzzalot]

So the broken back leaving me immobile has lit a new fire to spend more time at the gym. I go to phys therapy 2 days a week and now at least 2 nights a week I go to the gym. PT is mostly core and back stabilization and the gym I use to try to build and maintain muscles in my legs and arms.

Which is sometimes hard to do due to the whole fatigue thing. But I find myself easily motivated to hit the gym because every time I think about how I am tired and don't wanna go the PPSM statistics pop into my head. I try to be optimistic with this disease but it doesn't change the fact that I am going to do everything within my power to stay as mobile as possible.

So my arms have gained half an inch and my thighs have gotten smaller while my calves are growing. On the plus side I have lost 8 pounds.

Just wish I had the balance to get on the treadmill. This is my new goal.