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#19 | |||
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Grand Magnate
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I am 59, dxed with PPMS in 2002. For years I thought despite things I read "This isn't so devastating" Then boom, boom, boom. Foot drag, Canadian crutches, walker, power chair, pain and discomfort, on various meds for incontinence, but never a spasm. Now, no pain, left side does not work but can feel a hair, ib a chair but seem plateaued. WTF!?? Always waiting for the other shoe to drop. The years before dx and a few years before and after were wham bam. But now never nap, take Amantadin and nothing else, No meds (Oxybutin, etc.),dry mouth seems better. Don't know what to expect. I play it day by day.I still can't walk and pee every 3 hours but sleep through night.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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