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Old 12-02-2009, 12:15 PM #1
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Look at the number of views and on thread. Comon, make yout voice known. Just say hi.
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Old 12-04-2009, 12:09 AM #2
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Thanks for your thoughts, Kicker!! Yep, this lousy disease has to be so different for everybody that we all have to find what works best for us. And....I didn't go to my doctor Thursday after all. This darn weather with the rain, cold, rain, more rain, etc.....has me so sore and stiff, there was no way I could imagine getting into and out of a car twice besides just getting ready to go! Come on Docs......bring back the housecalls please!!!

Come out wherever you are PP and SPMS people!!!! Most everybody can't be RRMS!! That's just not fair!!!
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Old 12-04-2009, 08:30 AM #3
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Judy, I am sleeping more when I can, DH, morning lark that he is, let me sleep tp 7:45 today!! He's up at 5. Sometimes I practice in the mirror saying "your Honor, that's why I had to kill him" 8-). I hope it's the thought of getting ready for Christmas making me tired, not progression. Ide hit a level place but feel more cross-eyed lately, tired and turning in bed 180 degrees is harder. It's like the cotton underwear is Velcro on cotton sheet. Nylon makes it easier. I'll buy a satin fitted sheet to try. I wear Poise pads 24/7 now, so cotton undies really don't matter. I sleep good but need to turn to get pressure off limbs.
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Old 12-04-2009, 02:38 PM #4
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There are probably more PP & SP peeps out here, who are no longer having exacerbations, but It's a hard thing to admit, especially when the Docs are DXing us RRMS, so they can fill us full of their fav DMD.

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Old 12-04-2009, 06:17 PM #5
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Sally, think you're right. PP and SP are scarey. Like "abandon ye all hope".
It's a different can of worms. I pushed me (and DH) a little further tonight, got to buy some stocking stuffers and diffusers(scents) I wanted. I needto speak up for things.
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Old 12-05-2009, 06:31 PM #6
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Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.
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Old 12-09-2009, 09:01 AM #7
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Quote:
Originally Posted by Aarcyn View Post
Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.
We found the mattress toppers very effective. And get a good one that is at least 2 in thick. They just go on top of your mattress and provide alot of pressure relief.

I have heard that the full Tempurpedic can be hard to move around in and also hard to get out of. The foam material also is HOT, which some do not like at all!
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Old 12-10-2009, 04:25 PM #8
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Quote:
Originally Posted by Aarcyn View Post
Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.
If that tempur-pedic is a foam mattress, you need to give it a try first. I have a horrible time turning around or getting out of one.

My husband had to grab my legs and pull me out of those beds every time we hit one at a hotel.

I wouldn't have one in my house if it were given to me.

gmi
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Old 01-20-2010, 11:03 AM #9
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How on earth do you know if it is SPMS, when the neuro can't even tell you, I've been on LDN for 5 years now and I don't have anymore attacks, but I think I have progressed somewhat, I have never fully recovered from the first attack, which left me with partial paralysis, 15 years ago. It's so hard to tell about this disease.
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Old 01-21-2010, 01:34 AM #10
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Kicker --
"Back in the day", I probably would have thought that's just not right, the elderly couple, but now I'd be a member of the club! Funny how circumstances change your whole outlook on things. Always thought it was totally unfair with men having such an advantage in that department. I never could quite master the "art" when camping, hiking, whatever, and always ended up with some wet clothing!! lol!
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