[mrsD]

Originally Posted by Aarcyn

Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.

We found the mattress toppers very effective. And get a good one that is at least 2 in thick. They just go on top of your mattress and provide alot of pressure relief.

I have heard that the full Tempurpedic can be hard to move around in and also hard to get out of. The foam material also is HOT, which some do not like at all!

[barb02]

I have a fake tempur --pedic (still cost about $1500), and it does take some effort to turn over. It also gets rather hot in the spring/summer. I bought it about 3 months prior to first ms flare. My sis has an authentic one, and she loved it when she was pregnant. She says you do not feel the need to roll over much. But it too is hot.

[kicker]

We have a hard (firm) mattress DH picked out for his back. Even so I have trouble rolling over, swear cotton undies stick like velcro to cotton sheets and down quit and piecemeal quilt (needed in the winter cold here) are heavy to me. I fear therapudic will be too warm ( In summer I hate A/C at night, depend on ceiling fan and open window) but dislike HARD mattress. DD swears by down topper she has. I should borrow for a few nights.

[gonnamakeit]

Originally Posted by mrsD

We found the mattress toppers very effective. And get a good one that is at least 2 in thick. They just go on top of your mattress and provide alot of pressure relief.

This is very true. We have bought many of the mattress toppers throughout the years when we were staying in hotels or in between moves and not in our own beds.

The last one I bought is what I have cut up to use in my manual wheel chair. I put 4 layers in the seat and it is so much more comfortable that any of the wc cushions I have sat on.

gmi

[kicker]

DD tells me her down mattress topper would be terrible for me when I tried to turn.

[gonnamakeit]

Originally Posted by kicker

DD tells me her down mattress topper would be terrible for me when I tried to turn.

If you put it under the mattress pad it is fine. Otherwise it grabs you just like the tempurpedic foam grabs.

gmi

[kicker]

Originally Posted by gonnamakeit

If you put it under the mattress pad it is fine. Otherwise it grabs you just like the tempurpedic foam grabs.

gmi

I'll try that!!!

[Aarcyn]

Originally Posted by gonnamakeit

If you put it under the mattress pad it is fine. Otherwise it grabs you just like the tempurpedic foam grabs.

gmi

That is how I have my foam pad.

It also helps to use a good mattress pad. Worth a try and besides, a good mattress pad is worth the extra money. After all, it is something used EVERY night.

And Kicker, even you are worth it.

[legzzalot]

Question for the PPMSers. How much did you go through before the official PPMS dx?

I ask, as I am stuck in limbo land. sx started in aug of 2007... been in continual "flare" since with a 3 month reprieve, where the majority of sx (but not all) went away. MRI proved that copaxone actually made it worse. Horrible reactions to Avonex, now have 3 TY infusions under my belt. 14 MRIs since oct of 07 and every single one of them has progressing/ new lesions. Doc says I am no longer considered to have a remitting form of MS. And it is progressing faster than she has ever seen... yada yada...

BUT, she will not give me an official PPMS dx, nor an SPMS dx.... so I feel stuck somewhere in the land of the lost here. I get that a PPMS dx would pretty much kill any hopes with my insurance co, but not knowing is just as annoying. SO my question is, when do they call it??

[SallyC]

Wow, Legzz, I'm so sorry you seem to be heading that way. Your Doc already gave you the hint, when he said that you weren't RR anymore.

Your Doc probably is holding back on the PP DX, so you can still fill yer gut with TY or some other DMD. JMO, but I think you're wasting time and money on MS Meds, that are only for RR (especially Tysabri)

((((((((Legzz))))))))