[agate]

Me too, kicker. My feet get so cold in bed that I always wear warm socks at night.

[SallyC]

Originally Posted by agate

Me too, kicker. My feet get so cold in bed that I always wear warm socks at night.

Isn't that funny, I'm just the opposite, my feet get too warm at night and I have to kick the covers off of my feet. Otherwise I roast.

[nancymarie]

Thanks for the info.

Doi you think one of those boot shaped leg massager devices would be good?

Thinking of getting one for H.

[Aarcyn]

I think part of my problem is with Baclofen, that it makes my ankles swell. Plus I have some jerk spasms. DH rubs them when I ask. Elevating legs makes me spasm worse. Stuck between a rock and a hard place.

DD is becoming a massage therapist but too busy for me to get the benefits!! She did a short massage yesterday. I bought her a portable table and am having her work off the payments with massages!

[kicker]

Once in awhile (I try not to), I take Hydro/Acetam (generic Vicodin - More for sleep when I'm afraid discomfort might interfere. (love my sleep). Would it and LDN clash? Want to try LDN, could easily stop Hydro/Acetam, (take maybe 1 every week or 2)

[nancymarie]

Does anyone know if PPMS ever levels off and does not proceed to total disability ( bedridden, unable to move both arms and legs)?

[SallyC]

Originally Posted by nancymarie

Does anyone know if PPMS ever levels off and does not proceed to total disability ( bedridden, unable to move both arms and legs)?

I don't have PPMS, I guess I'm labeled SPMS, after having been RRMS for many years. MS is a mean disease and has no favorites. It's an equal opertunity employer.

IMO, PPMS starts out progressive and you never really have a remittance, but I believe there is a platteau for PPMS. It may be different for each individual, but will happen.

There is only one Type of MS that never stops until you are bedridden or die and it is very very rare. I don't know anyone who has had it, so don't worry about that.

Be well!!