[nancymarie]

Does anyone know if PPMS ever levels off and does not proceed to total disability ( bedridden, unable to move both arms and legs)?

[SallyC]

Originally Posted by nancymarie

Does anyone know if PPMS ever levels off and does not proceed to total disability ( bedridden, unable to move both arms and legs)?

I don't have PPMS, I guess I'm labeled SPMS, after having been RRMS for many years. MS is a mean disease and has no favorites. It's an equal opertunity employer.

IMO, PPMS starts out progressive and you never really have a remittance, but I believe there is a platteau for PPMS. It may be different for each individual, but will happen.

There is only one Type of MS that never stops until you are bedridden or die and it is very very rare. I don't know anyone who has had it, so don't worry about that.

Be well!!

[nancymarie]

Originally Posted by SallyC

I don't have PPMS, I guess I'm labeled SPMS, after having been RRMS for many years. MS is a mean disease and has no favorites. It's an equal opertunity employer.

IMO, PPMS starts out progressive and you never really have a remittance, but I believe there is a platteau for PPMS. It may be different for each individual, but will happen.

There is only one Type of MS that never stops until you are bedridden or die and it is very very rare. I don't know anyone who has had it, so don't worry about that.

Be well!!

Thanks for that Sally. It's good to know that H hopefully won't have to end up that way. He stays in the present mostly but it's I who get worried about the future. This disease is mean enough without taking even more away.

hugs
]M