I see. I missed the meaning then. If I'm like anyone else, and I may not be....I went to webmd and did the sx quiz. What was interesting is that when I answered I was numb in one hand, it then asked if it was just the thumb. It was. MS came up number one. There were others, all have been tested negative.

I guess where this has led to is this: Those who don't have a dx are in a sorry state of wonder. It's very hard. You see new folks come here that have one attack and get a dx the next day. Then theres those who have tested on and off for years, and have no dx, some who are incapacitated! There are some that have had less sx wise then me and have a dx. It makes me feel crazy!! I know I'm not. I was willing to follow that possiblity....but it's coming up negative too :)

Just understand that this is a hard place to be. I don't dwell on it (tho when I was fully numb I was frantic for answers). Now, I just enjoy talking, learning and sharing. I may have over reacted. Who else to share my fears with but all of you? I can't talk to family (except DH) as they all have it figured out....and I don't appreciate being dismissed or hearing how they experience this or that too....yeah??? You've been numb the whole left side of your body? You've had vertigo repeatedly? Whatever! So when I talk to all of you, its because I'm assuming you'll understand.

I agree Lady Express that stress can cause a flair. There is no doubt in my mind about that. It's imparitive that we learn coping skills to avoid the onset of sx.

Thanks for the conversation! :grouphug:

GJ and MX7 (and other Limbo Landers), I feel very bad if something I may have said on this thread has made you feel unwanted.

If so ... that was never my intention, nor was my post meant to demean your symptoms in any way.

I did post on the other thread the following "Please ..... Limbo Landers....no offence intended." and as that thread was referenced on here, I'd have hoped that what I'd said there,would also have carried through to here as well.

My apologies to anyone who may have taken my post the wrong way.

:hug: Koala

I don't think that anyone faults you. It's difficult without inflection or facial/body language or inflection.

This disease and/or its mimickers can be a real trial and we're all going through the sx in some way or another. It's easy to take one thing one way when someone meant it another.

ITA that coping skills are needed. Living on a roller coaster isn't easy. It's not fun knowing how you're going to feel (or not feel) from one minute to the next. But you do get used to it. Even after having 5 years of fun with this I get angry sometimes. I rail at the world, at God, at my body. And then I let it go. Because I know that I'm strong enough to handle this. Doesn't mean that I like it. I don't view myself as a martyr, but I do want to carry the "burden" of being "sick" as best as I can--without letting it define ME as a person.

Knowing I'm not crazy, knowing others go through the same or similar things helps a lot. And sometimes people CAN come down with something just because they've read it--it happens to some med students--they "live" the diseases they're reading about. that's ok. That doesn't mean we can't share. It doesn't mean we don't find comfort in knowing someone else can identify with what we have felt ourselves and maybe others have discounted.

For example, I remember when my neuro kept talking about clinical correlation. Geez, I got sick of those words. There was NO WAY he was ever going to get clinical correlation of my tongue tip vibrating. You couldn't see it! You couldn't FEEL it. It wouldn't have failed a neurological test. But it was there. It was as real as my hand in front of my face. I remember posting on another forum and someone came back and said they had the same thing. I felt SO relieved that I wasn't crazy. Clinical correlation be damned! I was vindicated.

And so it goes. newbies, limbolanders, diagnosed, old timers..... we're all in the soup together. It's an awfully bad tasting soup, but we're making the best of it.

And the best thing? We're doing it together.

:)

I must say that a global vote is needed to change the word "wannabe" to "wannadx". Thats what I wanted for 4 years before my DX in 1990.

Like you polar since October Ive had this annoying numbness from scalp to fingers. Yes have to pay attention to what I hold or it goes on the floor. Forget about trying to hang onto light stuff, it just goes anyway. Started with that band like sensation in stomach and is now around neck for who knows how long.

GJ, and the rest of the "wannadx" I sure hope you can find an answer to your problems. Unless your one of the rare cases to get an immediate DX , then we have all been there. If you disappear from this forum then I will have to track you down and hold you for ransom, and when I get paid have a party.

My greatest regret is anyone feeling bad today!! :grouphug:

Those of us that don't have our answers (i.e. ME!) may be a bit SENSITIVE and looking for validation. I obviousley misunderstood the meaning and 'my bad'!!! Maybe I was just mad because it's so easy to have answers when you know whats wrong...then there sits me, wondering WTF????

It's not anyone's fault...it was a moment of venting out after 6 months of nothing (but a firm dx for RLS, Situational Depression and my multiple bad back issue).

I hope everyone is feeling better tonight, I am after a good nap :o Please accept my apology!! You are all THE BEST!


I hate to choose favorites :p but YOU ARE ONE OF MINE!!!:hug:

Okay, Now I'm ROFL!!! "disease du jour".....too funny!!!

You brought this thread back to a good place, and I thank you for that! Inclusion feels good. Have I gotten sappy enough yet? :D

Name dropper...:D:D:D

:grouphug:

My right side numbness drives my neuro bonkers. I fail the vibration and pin prick test. I have trouble feeling heat, which is fun when you forget which hand is needed to test if the water is hot. :rolleyes: I sometimes have problems feeling pressure, which makes holding glasses a "no go"

The best description is my hand and foot are wrapped in saran wrap. The tight panty hose is another good description.

He still tests me for other possible issues every once in awhile since it's so bad, but so far - nada.