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11-21-2009, 12:45 PM | #1 | |||
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Grand Magnate
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All you PPMSers! See sticky, post, tell them we're here!!!!
OK. I'm a little bit of a rabble rouser (sp?) - but let's make our voices be heard (I'm exhausted now - need nap)
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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11-21-2009, 12:46 PM | #2 | |||
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Grand Magnate
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You SPMSers too! Add your voice.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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11-21-2009, 10:24 PM | #3 | |||
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Magnate
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Wait wait, what about the weirdos like me??
I am no longer considered RR, it is definitely progressive. Does not respond to steroids which indicates a lack of inflammation ... which tends to agree with a PP dx, BUT... it's only been a year and you did have that 2 months where most of your sx went away... except those two which steadily increased each day until new things started to happen, so it could be SP but then again that should have responded to steroids.... and none of the MS treatments have done anything so far, other than to make the MS get mad and multiply... So the bottom line is... You are no longer considered to have any relapsing form of this disease... but we don't know what to call it. It's weird I almost DON'T want to know at this point... but not knowing is horrible. Not that they could do anything different for it either way...
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11-22-2009, 08:30 AM | #4 | |||
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Grand Magnate
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Weirdies always welcomed in my world. Almost SPMS sounds OK to me. Us PPMSers and SPMSers tend to not be prejudiced!!!!!!!!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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11-22-2009, 08:34 AM | #5 | |||
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Grand Magnate
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My right elbow pain that made me cry at night is gone (was around a few nights but never returned), pain in shoulder and side of back gone(??) with MS, anything can happen. Never enhance but MS never follows rules!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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11-26-2009, 02:06 PM | #6 | |||
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Senior Member
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Bumping this up again.
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"Thanks for this!" says: | dmplaura (11-26-2009) |
11-27-2009, 04:59 PM | #7 | |||
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Grand Magnate
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Bumping up
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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12-01-2009, 01:17 PM | #8 | |||
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Member
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Keep on bumpin or kickering
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12-02-2009, 08:43 AM | #9 | |||
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Grand Magnate
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Duct-taping this to top. jmiller, are you PPMS or SPMS? Post on PPMS/SPMS even if you're RR so we have a chance at getting a forum of our own (size or numbers of participants does count). Come say howdy and give some duct-tape wisdom. Ever use WD-40?
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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12-02-2009, 12:04 PM | #10 | |||
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In Remembrance
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I don't understand?? Don't you have a sticky at the top of the forum??
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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