advertisement
Reply
 
Thread Tools Display Modes
Old 11-21-2009, 12:45 PM #1
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default PP multiple sclerosis

All you PPMSers! See sticky, post, tell them we're here!!!!
OK. I'm a little bit of a rabble rouser (sp?) - but let's make our voices be heard (I'm exhausted now - need nap)
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZjanie (11-30-2009), Koala77 (11-21-2009), Riverwild (11-21-2009), SallyC (11-22-2009)

advertisement
Old 11-21-2009, 12:46 PM #2
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

You SPMSers too! Add your voice.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZjanie (11-30-2009), Koala77 (11-21-2009), Riverwild (11-21-2009), SallyC (11-22-2009)
Old 11-21-2009, 10:24 PM #3
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Wait wait, what about the weirdos like me??

I am no longer considered RR, it is definitely progressive. Does not respond to steroids which indicates a lack of inflammation ... which tends to agree with a PP dx, BUT... it's only been a year and you did have that 2 months where most of your sx went away... except those two which steadily increased each day until new things started to happen, so it could be SP but then again that should have responded to steroids.... and none of the MS treatments have done anything so far, other than to make the MS get mad and multiply...

So the bottom line is... You are no longer considered to have any relapsing form of this disease... but we don't know what to call it.

It's weird I almost DON'T want to know at this point... but not knowing is horrible. Not that they could do anything different for it either way...
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (11-22-2009), SallyC (11-22-2009)
Old 11-22-2009, 08:30 AM #4
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Weirdies always welcomed in my world. Almost SPMS sounds OK to me. Us PPMSers and SPMSers tend to not be prejudiced!!!!!!!!
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (11-26-2009), legzzalot (11-22-2009), SallyC (11-22-2009)
Old 11-22-2009, 08:34 AM #5
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

My right elbow pain that made me cry at night is gone (was around a few nights but never returned), pain in shoulder and side of back gone(??) with MS, anything can happen. Never enhance but MS never follows rules!
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (11-22-2009), legzzalot (11-22-2009), SallyC (11-22-2009)
Old 11-26-2009, 02:06 PM #6
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default

Bumping this up again.
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (11-26-2009)
Old 11-27-2009, 04:59 PM #7
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Bumping up
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Old 12-01-2009, 01:17 PM #8
jmiller's Avatar
jmiller jmiller is offline
Member
 
Join Date: Jan 2008
Location: Spring Hill, Florida
Posts: 314
15 yr Member
jmiller jmiller is offline
Member
jmiller's Avatar
 
Join Date: Jan 2008
Location: Spring Hill, Florida
Posts: 314
15 yr Member
Default

Keep on bumpin or kickering
jmiller is offline   Reply With QuoteReply With Quote
Old 12-02-2009, 08:43 AM #9
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Duct-taping this to top. jmiller, are you PPMS or SPMS? Post on PPMS/SPMS even if you're RR so we have a chance at getting a forum of our own (size or numbers of participants does count). Come say howdy and give some duct-tape wisdom. Ever use WD-40?
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Old 12-02-2009, 12:04 PM #10
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

I don't understand?? Don't you have a sticky at the top of the forum??
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
multiple sclerosis? ConnieS Myasthenia Gravis 15 09-13-2009 02:07 AM
L3 Fracture & Multiple Sclerosis possma Spinal Disorders & Back Pain 0 05-08-2009 04:37 AM
Insomnia & Multiple Sclerosis jackD Multiple Sclerosis 16 10-05-2008 12:14 AM
Vitamins and multiple sclerosis Tree55 Vitamins, Nutrients, Herbs and Supplements 2 09-10-2008 06:25 PM
Testosterone May Help Men With Multiple Sclerosis BobbyB ALS News & Research 0 07-16-2007 07:37 AM


All times are GMT -5. The time now is 01:05 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.