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11-21-2009, 08:54 PM | #1 | ||
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Did everyone catch this documentary? It had me in tears a few times with the hope it offers for us:
The Liberation Treatment |
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11-21-2009, 09:20 PM | #2 | |||
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Magnate
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I watched it earlier (commented in the other thread about CCSVI) and my email's been sent offering my MRI scans already
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (11-21-2009) |
11-21-2009, 10:04 PM | #3 | ||
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Member
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It was very moving and I hope it is the real deal for curing/treating MS patients. Hopefully we are not far away from getting the treatment here.
It seems so simple that it is mindboggling why none of the researchers here have discovered what is going on in the disease. It is of no use to the pharma companies except for those selling balloons, so maybe there will be a fire sale on the old meds. gmi Last edited by gonnamakeit; 11-22-2009 at 12:17 AM. |
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"Thanks for this!" says: | SallyC (11-21-2009) |
11-21-2009, 10:16 PM | #4 | |||
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In Remembrance
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Amazing!!!!!
I wonder if it's too late for some of us. due to progression and damage already done. He did say something to that effect, in the Documentary.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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11-22-2009, 12:16 AM | #5 | ||
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Member
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From what I gathered getting the procedure done would stop any further progression. It appears that it may be too late for getting much better though once a person leaves the RRMS phase.
The criteria for the trials in the US are asking for RRMS, SPMS and PPMS, so there are no concrete delineations yet, or so it appears as to which of us might be helped or not helped. We should know more in another year. Better yet, no PML! gmi |
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"Thanks for this!" says: | SallyC (11-22-2009) |
11-22-2009, 12:27 AM | #6 | |||
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Magnate
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I wonder if this could explain the rare, fatal form of MS (marbug?... I can't remember the name). Sudden onset of narrowing (extreme) of the veins, resulting in very limited or no drainage and/or fatal levels of iron in the brain?
Hrm... it's all very interesting to think about, even if it's only 1 piece of the puzzle in the end.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (11-22-2009) |
11-22-2009, 08:25 AM | #7 | |||
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Elder
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I have forwarded this to my MS center. Lets see what they say. I have found them to be really open minded about such studies.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: |
11-22-2009, 11:50 AM | #8 | |||
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Elder
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I found this to be very interesting...I haven't read the other thread about ccsvi yet, but I'm going to do some digging, since I see my neuro in a couple of weeks...
thanks for sharing!
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | SallyC (11-22-2009) |
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