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Doc just called. I'm starting Ty on Monday!

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Old 11-17-2009, 03:35 PM #1
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Default Doc just called. I'm starting Ty on Monday!
And now that all of my friends and family are freaking out on me and telling me how much they don't want me to start this drug....

But I am determined to be optimistic! Monday is the day. Any advice I should know? Things they don't tell ya?
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Old 11-17-2009, 04:55 PM #2
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Hooray Legzz! I hope you'll get good results from Tysabri. Your friends and family shouldn't worry, most of the PML cases happened after about 24 infusions. Between now and then, there will very likely be a better alternative for you to take.

Make sure you're well hydrated by drinking plenty of water. Expect to rest afterward, because you might get tired after the infusion.
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Old 11-17-2009, 04:59 PM #3
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good for you legzz.
i hope T helps you. please keep us posted on how you're feeling.
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Old 11-17-2009, 05:12 PM #4
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What Wiz said!
Relax, hydrate, and rest afterwards. Bring something to keep you busy during the infusion and the wait afterwards, or catch up on your sleep!

Let us know how it goes.
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Old 11-17-2009, 08:39 PM #5
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Are they doing any prelimitary testing for JV or other factors now?

I hope it helps you. Legzz..
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Old 11-18-2009, 02:06 AM #6
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I applaud your determination to find something that will help. Wishing you wonderful results!
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Old 11-18-2009, 04:11 AM #7
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Quote:
Originally Posted by SallyC View Post
Are they doing any prelimitary testing for JV or other factors now?

I hope it helps you. Legzz..
No clue. I know there will be bloodwork. I was told to expect to be there for at least 3 hours. They have determined I need a slow drip since my veins like to explode. On the plus side... Because it is done in the hospital, ins should cover it at 100% with no copay since I have already reached me deductible.
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Old 11-18-2009, 09:59 AM #8
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Welcome to the club, legzz! I hope Ty works as well for you as it has for so many others. Let us know how it goes!
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Old 11-23-2009, 04:41 PM #9
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Welcome to the club. I've had two infusions so far, and they both went fine. I did get really thirsty after the first, but then found out about hydration. I wish you all the best, legzz!
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