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Old 11-23-2009, 10:43 PM #1
Catch Catch is offline
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Catch Catch is offline
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Default Just curious

I know everyone's MS is different, but mine seems particularly different, so I'm curious about the rest of you.

How many MS sx do you have? 1, 3, 5, many?
When sx bother you, or you are in a flare, is it 1 issue? 2? 5? many?
Do your sx come and go throughout the day, hour, week?

If I sat down and counted every sx I have or have had, it seems like a lot. Usually something everyday.

Here's my quick list:

twitches (arms, legs, back)
muscle spasms (legs and back)
the hug
numb spots
lead legs
jello brain
eye/ear/neck pain
TN (?)
shooting pains in arms
hand & wrist pain
right knee pain and limited movement
gastroparesis
pins and needles in hands & feet
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Old 11-24-2009, 12:36 AM #2
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dmplaura dmplaura is offline
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dmplaura dmplaura is offline
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Default

Quote:
Originally Posted by Catch View Post
I know everyone's MS is different, but mine seems particularly different, so I'm curious about the rest of you.
I think it's safe to say, we're all particularly different with our symptoms, however there are cross-over points. For me it's day to day:

-Trigeminal Neuralgia/Neuropathy of the head/mouth (these are the worst, by far). ---> headaches usually accompanying this mess.
-Numbness in fingers/hands (off and on)
-Extremely blurry vision (sometimes doubled, or garbled)
-Altered sense taste and smell
-Mild fatigue (could be attributed to my medications for pain though)
-Electrical 'twinges', esp. one on the bottom of my left foot (feels like a buzzing or humming)

I'm pretty lucky, but some days I'm on a pain scale with my neck up of 13 out of 10.

In a relapse I have much more vicious symptoms.. vertigo, extreme extremity numbness, loss of sense of body parts (right leg last time), L'Hermittes Sign, girdle-band(ing)... I even had severe facial spasms that looked like reversed Bells Palsy (face pulling upwards instead of drooping) with twitching everywhere on 1 side.

I've had a lot of different come and go symptoms and when I list them, I always read back over them and remember ones I've missed.

I'm almost 100% affected by sensory symptoms, in any event.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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