Welcome Charley, nice to have you with us. :)

Yes spasms are painful and so is nerve pain, Doc..

Hi Charley and welcome to the group! :) Isn't it fun when people (especially doctors) seem to think MS is painless. :rolleyes:

When my first neurologist said "I think your MS is benign" :mad:

Hey! so was mine! What a coincidence! We both have doctors who like to BS their patients!

There is no such thing as "benign MS". MS does what it wants, when it wants and it doesnt listen to arrogant neuros who still believe there's such a thing as "benign MS".

My first Neuro said the same thing to me! What the heck is "benign MS" anyway? I can definitely tell him that it is not benign.....in any way, shape or form.

You know, since doctors and the medical profession seem to have such a hard time relating to people with MS I think we should charge them to treat us since they are getting an education while trying to figure us out! :cool:

Very few neuros are charming are they? I had one and he moved away, dang it. My current one may need a tree surgeon to help remove a stick.....

not dxed so far... but...

dumbest comment from a doctor about my sxs...

I just got done going over with a new neuro info on family.. that I have five kids, and before the last three also had lost a baby full term... (this added to tweek how dumb the comment was)

so we went over my sxs, she said the memory is adult ADD (which a neuropysch did the testing did not say that... she asked if been tested for MS)

then said my balance is inner ear issues... (nope seen ENT.. who thought part of neurological nature)

then said all the rest of sxs... numb/tingling, pain etc.. is anxiety...

so when I am pregnant I do not get any of these sxs....

so I asked her when preggo does adult ADD or inner ear issues go away.. she said "not sure"

I said cause it seems to clear when preggo...

then the kicker here it is... I asked does sxs of anxiety that you say... do those go away when your pregnant... as they do when I am pregnant...

"yes, they would with you, as you are so happy when pregnant my dear"

yep that is what she said.... wanted to cry but thought she then would say I am a nut that needs anti depressants...

I could not believe that not knowing me at all... as I am happy go lucky preggo or not... plus that with losing a child full term.. the three after I am sure even if did not feel ancy must have been somewhat! that would cause issues....

anyhow that is so dumb... nope did not go back to that neuro office!

hugss all, sarah

And today... the award goes to my ex for the stupidest comment....

"well i hope you guys move back down here (Richmond) before you are wheelchair bound. I mean just meeting you halfway is a hike for me."


I am so sorry my MS and the fact that you chose not to marry me after we were together for 4 years and I gave birth to your only child is such an inconvenience for you. I know for a man who DRIVES for a living, that making that extra 40 mile trip every other weekend is just waaaaaay too hard. Maybe we should reconsider this visitation thing so you only have to make the trip once a year? :mad:

Geeze, that was overly mean and nasty of him. I'll be mad with you. :mad:

Its all good he brought DD to the santa:santa: breakfast this morning. we made a "special" plate just for him! Hey, only one day a year do I have access to the man's food, his comment yesterday was a bad idea. :Thats-Funneh:

Note to self: Don't let Legzz fix my plate at any function!! :cool: :D

Legzz,
That man is an idiot.

Aside from the many people who purport to know someone with MS who "isn't affect at all," I've had only one truly dopey comment. From my Dad when I told him:

"My brother caught that when he was in China during the war." :confused:

Most of my life, I was very active and always plenty warm in just a heavy sweater. One winter day when I was in an attack, a friend was freaked out that I wasn't in a coat (I was fine!) and said, "See, you bring all of this on yourself!"

If only I had known that a winter coat would have spared me! :rolleyes:

the day I was dx'd with MS (April 3, 2007) ... my neuro said:

'stay outta hot tubs'

I had no clue what she meant ... then realized much later that I can't sense if something is hot or scalding .. so, it would be too late - I would be cooked, more like 'boiled' ... :stirthepot: (don't get to use this emoticon very often!)

A stranger asked me, "Are you one of Jerry's Kids?" :rolleyes:

I wish we could think of a snappy comeback for that comment. :rolleyes:

I have one! My mom's name was Geraldine and she went by Jerry (spelled that way); I have also been asked that lame question and I just say, "Yep, I'm #4 in a litter of six."

Yes I am! And you can make your checks payable to..... Insert name here....!
And thank you so much for your donations!

Someone else said in another post on here somewhere..."No, one of Montel's!"

I have to add a comment that wasn't said to me but to someone I met via the internet on another site that had nothing to do with MS. But when I mentioned I'd just been dx'd, she told me of her recent visit to her local "Expert" for a new flare (severe balance issues among others). She'd been dx'd for a number of years and been through plenty of flares already. But apparently hadn't seen this guy before:

He simply told her that she couldn't possibly have MS as he "could not smell it on her." :eek:

Apparently there is a BIG difference if you see a neuro that graduated at the top of his class and one that graduated at the bottom of the class! Wish we could find out who was who.

Oh that is like the neuro on call at my neuro's office who told me when i called that i was not having an exacerbation because these were all symptoms I have had before. This was also the same one who two weeks prior told me without seeing me that I was not having a flare, that people with previous back injuries usually have pain in their back. Even though I had no recorded back injuries other than the giant holes in my spinal cord caused by MS!

I've gotten the "it's not an exacerbation because you've had this symptom before..." line from my neuro...while he's ignoring the 3 new symptoms that arrived with the old one.

Makes you want to smack the neuro with his medical diploma.

From someone who had Googled MS:
"Well if you do have MS, it's not like it really shortens your life span or anything"....
:rolleyes:

Of course, my DD, the baby of the family, immediately asked me, "It's not hereditary, is it?"
Thanks for your compassion...
She is compassionate, just looks out for herself, as all last-borns do (me included!).

That was the first question out of my mouth after I got the dx. I didn't want my children to have to worry about developing this disease. I've gotten completely different answers from different sources. :rolleyes:

Thanks for the welcome! Oh my gosh guys, that is exactly what my first neurologist did to me too! In fact he didn't even diagnose it - he said "if it really is MS, then it's probably benign MS." I wish I had know two years ago how full of it he was, because I have really aggressive case on my hands now, having finally been diagnosed in February of this year and now after a major exacerbation in November I'm using a walker and an electric wheelchair to get around..

My father did the first disability study on MS, and I find that the stupidest claims are made by the drug companies touting the effectiveness of their MS medications, specifically that their Drug has effectively changed the disabilty rate from ten years (my father's study) to nineteen years, forgetting that when my father published it took an average of six or seven years to get diagnosed, while today a Dx can be made in a week or so. Add seven years to the ten years (equals 17) and compare it to the 19, and the new drugs have not been very effective in helping those with MS.