advertisement
Reply
 
Thread Tools Display Modes
Old 12-15-2009, 06:40 PM #61
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Oh that is like the neuro on call at my neuro's office who told me when i called that i was not having an exacerbation because these were all symptoms I have had before. This was also the same one who two weeks prior told me without seeing me that I was not having a flare, that people with previous back injuries usually have pain in their back. Even though I had no recorded back injuries other than the giant holes in my spinal cord caused by MS!
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-18-2009), SallyC (12-15-2009)

advertisement
Old 12-15-2009, 09:40 PM #62
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

I've gotten the "it's not an exacerbation because you've had this symptom before..." line from my neuro...while he's ignoring the 3 new symptoms that arrived with the old one.

Makes you want to smack the neuro with his medical diploma.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-18-2009), legzzalot (12-15-2009), SallyC (12-15-2009)
Old 12-18-2009, 05:36 AM #63
Freesia38's Avatar
Freesia38 Freesia38 is offline
Member
 
Join Date: Jul 2009
Location: Australia
Posts: 108
10 yr Member
Freesia38 Freesia38 is offline
Member
Freesia38's Avatar
 
Join Date: Jul 2009
Location: Australia
Posts: 108
10 yr Member
Default

From someone who had Googled MS:
"Well if you do have MS, it's not like it really shortens your life span or anything"....
__________________
Michelle, 50yo, Australia
No dx - just questions.
Freesia38 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-18-2009), SallyC (12-18-2009)
Old 12-18-2009, 05:23 PM #64
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

Of course, my DD, the baby of the family, immediately asked me, "It's not hereditary, is it?"
Thanks for your compassion...
She is compassionate, just looks out for herself, as all last-borns do (me included!).
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-18-2009), SallyC (12-18-2009)
Old 12-18-2009, 05:27 PM #65
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by Debbie D View Post
Of course, my DD, the baby of the family, immediately asked me, "It's not hereditary, is it?"
Thanks for your compassion...
She is compassionate, just looks out for herself, as all last-borns do (me included!).
That was the first question out of my mouth after I got the dx. I didn't want my children to have to worry about developing this disease. I've gotten completely different answers from different sources.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (12-18-2009), SandyC (12-20-2009)
Old 12-21-2009, 01:40 PM #66
charleyevans's Avatar
charleyevans charleyevans is offline
Junior Member
 
Join Date: Dec 2009
Location: Austin, TX
Posts: 9
10 yr Member
charleyevans charleyevans is offline
Junior Member
charleyevans's Avatar
 
Join Date: Dec 2009
Location: Austin, TX
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by Kitty View Post
My first Neuro said the same thing to me! What the heck is "benign MS" anyway? I can definitely tell him that it is not benign.....in any way, shape or form.

You know, since doctors and the medical profession seem to have such a hard time relating to people with MS I think we should charge them to treat us since they are getting an education while trying to figure us out!
Thanks for the welcome! Oh my gosh guys, that is exactly what my first neurologist did to me too! In fact he didn't even diagnose it - he said "if it really is MS, then it's probably benign MS." I wish I had know two years ago how full of it he was, because I have really aggressive case on my hands now, having finally been diagnosed in February of this year and now after a major exacerbation in November I'm using a walker and an electric wheelchair to get around..
charleyevans is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-21-2009), SallyC (12-21-2009)
Old 12-21-2009, 02:04 PM #67
michael178 michael178 is offline
Member
 
Join Date: Mar 2007
Location: south dakota
Posts: 225
15 yr Member
michael178 michael178 is offline
Member
 
Join Date: Mar 2007
Location: south dakota
Posts: 225
15 yr Member
Default

My father did the first disability study on MS, and I find that the stupidest claims are made by the drug companies touting the effectiveness of their MS medications, specifically that their Drug has effectively changed the disabilty rate from ten years (my father's study) to nineteen years, forgetting that when my father published it took an average of six or seven years to get diagnosed, while today a Dx can be made in a week or so. Add seven years to the ten years (equals 17) and compare it to the 19, and the new drugs have not been very effective in helping those with MS.
michael178 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AfterMyNap (12-22-2009), Kitty (12-21-2009), SallyC (12-21-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ocular MG; plz comment ilcraque Myasthenia Gravis 13 08-07-2009 03:07 PM
TBI/PCS symptoms for comment vini Traumatic Brain Injury and Post Concussion Syndrome 3 08-25-2008 09:46 AM
TBI/PCS symptoms for comment vini Headache 2 08-21-2008 05:30 AM
TBI/PCS for comment vini New Member Introductions 2 08-17-2008 03:27 AM


All times are GMT -5. The time now is 09:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.