The problem is we all do look so @#$%^@#$%^%#@$ good!!!!!!! We are something.

So true.

gmi

I hear ya Kick!!! I've told my DH that when someone asks him how I am doing, to just say fine. I sometimes ''tire'' of trying to explain what's going on w/me. I know people mean well, but most of the time, they just don't understand.

Hang in there, Kick~ I get ya!!!

I just say to people, or have my DH say to people. "I have good days, and bad days." If I feel okay that day I say it. They ask, "How are you?" I say, "Today I feel good", or whatever.

If my DH says something stupid to me, like trying to compare me or my energy level to his, or not being able to go some place he wants to go. I just tell him, well I have MS. You should be thankful you don't. Or I joke back and say,"Want to trade places?".

He gets it, when he forgets it, and so do others, but nicely.

Do I feel guilty, absolutely. I feel some days I am holding DH and family back. But I turn on my brain and say, "If you want to go the store, then go-if you want to visit someone then go visit."

But I would never take any cruel words or gestures from anyone. Not even my family. After all, it could be them, and not me. I would never make fun, or jest at another person's illness.


I didn't ask to get MS, it is not my fault. That is my only mantra to myself. It just happened.

We can, on bad days, turn whatever someone says into a negative sentence. We just have to learn the difference. They might mean something else, ...or maybe not.:hug:

I have to guess most of those people think the same of you that we do here, Kicker. That you ARE strong, that you are a fighter, that you are doing better than most people would, given the challenges you face.

It's tough to put that into words - especially for folks who have not had to tow that line.

I have to guess they are trying to tell you that they know things are tough for you but you're tough and fighting it all the way, as gracefully as you can. That they don't mean to say that you could do better, but rather they wonder if they could do as well.


Surely, if we can see it from a forum, they can too right there in the room with you. You're stronger than you know.

:hug:

What a thoughtful, articulate post!!! :cool: