Congrats on your impressive Pelvic muscles. Doing your Kegels, huh? Does your neuro have you undress? I don't know if this is good or bad - on my 5th neuro, since 1st, no one touches me or neuro tests (touch nose, pin-pricks etc.) Is this because I'm PPMS or what. I'm ok with this as I am keeper of my own gate and symptoms, we (both me and Neuro) know nothing to be done, they throw me Novantrone, 4-AP, nothing helps but does anyone else have any different experience. (well, Uro. put me in a gown because............)

[QUOTE=legzzalot;604548]
We learned that my bladder only wants to work at full capacity, i cannot go unless there is at least 16 oz of fluid in there

This sounds normal/good. Is it?




She says it is looking like a nerve] issue... gee, doc... ya think?
I'm no doctor, could it be ....MS?

I actually had a pretty good (?) experience with urodynamics. A nurse specially trained in doing the test was so kind, and gentle. She explained what she was going to do, and told me when she was going to touch me, etc.
It wasn't the most comfortable procedure, but it was helpful to have someone so professional and kind.
The surgeon was the same way when he sent a camera up in the bladder to check things out. He explained what I was seeing, and showed me when the bladder walls were spasming...yep, that is an MS bladder...sigh...

And the results are in......

Well, I don't have a high pressure bladder, which is the good news. The bad news is, I don't have a functioning bladder either. The bladder does nto contract at all when I go, so when i go, i am relying solely on my abs/pelvic muscles.

Nothing he can do about it, doesn't think it is a crushed nerve now he thinks it is from one of the many holes in my spine, which of course we cannot fix with surgery. And he wants me to self cath at least once a week to drain it completely to try to prevent it from effecting my kidneys!

I get to go back friday to learn how to do the cath.

It's officially being diagnosed as yet another MS problem.

So sorry, sweetie
Shame on you, lazy bladder!!
Actually, it can't help it...the electric lines are down...no communication.

Hope the self-cath goes well...

i'm sorry legzz.
at least cathing is available. anything to protect the kidneys.

hang in there.

I don't wanna go!!!!

Today I am scheduled for blood collection, another set of ultrasounds and I get to learn to self cath.... Something tells me this is going to be the worst doctor's appointment ever!!!!

Quit your crying and woman up! lol j/k I'd feel the same way too. I hate going for those studies and dread the day that I have to self cath. Hoping I never do.

I hope all goes well today for you. Think positive - you are taking care of it and will learn techniques that will only benefit you in the end. Let us know how it goes.