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Old 01-15-2010, 09:01 PM #11
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I have lists and instructions on the kitchen cupboard that help me remember. I have three notebooks at hand, one in each room to jot stuff down.
My fast approaching overseas trip is planned and listed with clinical precision with notes and papers in abundance.
I remind myself to get my head IN the car before shutting the door
When trying to do (very) novice dressage on my horse, I talk my way through it and hope he understands me 'cos getting hands and legs and seat working at the same time is nigh on impossible. If he doesn't get it, I pretend we were trying to do something else.
On the way to a recent Beta night, I drove past the conference centre, read the building name and somehow convinced myself there would be another building with the same name further down the road. I was looking for 199 and as the street numbers got smaller, it still took me a few Km's to work out that actually 199 was before 13, 11, 9 ...

BUT, the GOOD news guys.....!!!!!! NONE of this is caused by MS don't you know????????

Honest, my neuro/carp doctor told me so.

'It can't possibly be an MS issue as these things don't develop until WAY down the line. So if you're well enough to drive, you can also work and concentrate and carry on as normal. Just try to forget about it and carry on as you were'.
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Old 01-15-2010, 09:13 PM #12
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I drove home once without remembering how. I remember leaving the building and entering my front door, but nothing in between. I haven't driven but once since Sept. and that was because my DH was drinking.

I sometimes feel very disoriented when driving, like I'm just learning to drive and I'm not sure where I need to go. It is like being in a different town, but I grew up here, I know where most things are, so why do I feel like I've only been here once or twice?

Tonight I made shrimp alfredo with liguini...I almost put in sugar rather than butter for the cream sauce. I don't use a pre-mixed sauce, I make mine from cream. The containers are both yellow, but still, the butter was sitting right in front, when I opened the top, I dipped out the sugar. I caught myself this time, but there have been times I really should not be cooking.

Strange as it is...Thanksgiving...no problems. I cooked for fifteen people...butterbeans, peas, turkey, ham, dressing, dumplings, ambrosia, tira misu, pecan pie, bananna pudding, etc.

Other times, I can't boil water...and no its not an 'age' thing...lol

I get it...I truly do.
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Old 01-15-2010, 09:25 PM #13
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When my friend Julie found out what I had done to the water I put on the stove and then forgot she said....."you know, you're the only person I've ever known who could burn water".
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Old 01-16-2010, 11:17 AM #14
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I had a neuropsych evaluation at the end of a bad relapse a few years ago.
I was NOT happy with the psych's comments, but the actual testing results spoke for themselves and confirmed what I was telling my then neuro.
I was in big trouble as far as recognition, organization, memory, concentration, retention and attention.
The test results don't lie. It was bad enough that I could have applied for SSDI and got it on the first try!
Fortunately, I recovered most of it or learned to (i am word searching here for the correct word! Is it cope or substitute or relearned or what???) for the rest of what I lost.

SEE?

COMPENSATE!!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
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Copaxone 05/05-12/06
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Last edited by Riverwild; 01-16-2010 at 11:58 AM. Reason: cause I remembered the word I was searching for!
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Old 01-16-2010, 09:53 PM #15
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Before I read your final answer, River, I was saying Compensate. I am always searching for a word.
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Old 01-19-2010, 09:07 PM #16
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Quote:
Originally Posted by COK View Post
I drove home once without remembering how. I remember leaving the building and entering my front door, but nothing in between. I haven't driven but once since Sept. and that was because my DH was drinking.
I'm afraid that's whats happening to me at work! I work for a lawyer, and he keeps catching things that I've forgotten to do, but I swear I did. I can even "remember" doing things, that upon evidence, have NOT been done, or vice versa. I've done things, but do not remember doing them, or so it seems. Like saving a document after changes have been made, then emailing it to god and everybody, only to have my boss print the emailed doc in my face and ask me why did I send the incorrect do, didn't I make these changes? I absolutely don't know what happened. And its not the first time! I am so scared I'm not going to be able to hold this job for another year, let alone, ten (which was my hope).
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Old 01-20-2010, 12:42 AM #17
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Quote:
Originally Posted by SallyC View Post
Before I read your final answer, River, I was saying Compensate. I am always searching for a word.
You get a cookie. I didn't get it until I read the word Compensate at the bottom.

Everything is a thingy or a whachamacallit, and everyone is whatshername.

And it stinks, cuz I'm writing a lot (stories) sitting here yelling at myself "UGH!!! You know that word!" And the dogs are looking at me like
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Old 01-20-2010, 10:52 AM #18
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Because of all these problems, which I have also, do you find yourself not as sociable as you used to be, I'm okay with the people that know me, most of the time, but others, like strangers, I don't want to be around, my DH sometimes calls me unsociable, but then I think what the heck, these people won't remember me anyway and really don't care. If I embarrasse myself, well it just happens. I probably don't even make sense writing this.
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Old 01-20-2010, 11:46 AM #19
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Because of all these problems, which I have also, do you find yourself not as sociable as you used to be, I'm okay with the people that know me, most of the time, but others, like strangers, I don't want to be around, my DH sometimes calls me unsociable, but then I think what the heck, these people won't remember me anyway and really don't care. If I embarrasse myself, well it just happens. I probably don't even make sense writing this.
You make lots of sense.

I've found myself thinking twice before approaching someone new. I'm pretty sociable in casual situations. Like, in the grocery store I'll talk to just about anyone. There aren't many formal situations I'm forced into.

Since I'm home alone most of the time I've gotten sort of used to being by myself. I do talk to my cats.....
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Old 01-20-2010, 02:25 PM #20
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I talk to myself, constantly--at work, at the store, in the car. The scary part is, sometimes I hear someone talking to me, but no one is there...guess its "phantom noises" and a problem with my hearing. So far I haven't answered the voices.
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