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Old 01-11-2010, 09:25 PM #1
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Default how to tell the difference?

Ok,Ive had ms since 07.
Was on copaxone for a while,but now have gone all natural.

Doing pretty fine,until a very eventful summer. Very stressful at that!!

It started out okay. Then mid july,I started having problems with my bladder.
Then memory problems got worse,balance was iffy,then numbness.
I have had 4 MRI's this past summer alone.
All of em show no new leasions,and no inhansements of old ones.
If anything the old leasons aer healing!! which is great news!!

But I seem to be having worsening of sx..
Now my memory is very iffy. Im getting really scard now.
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Old 01-16-2010, 11:23 AM #2
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There can be damage going on that cannot be seen on MRI. Both white and gray matter in our brains are utilized and it's like the ocean, the scientists don't know what it all does yet or how it all affects our processes. The strength of the MRI also can make a difference as far as what is seen.

Have you had IVSM for it yet? If I was having these problems I would have steroids even if the MRI didn't show clinical proof because the MRI cannot show all that is going on. There's underlying damage happening.

Sorry to hear you are going through this! Let us know how it goes!
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SallyC (01-16-2010)
Old 01-16-2010, 02:02 PM #3
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Hi Aly, Welcome. I'm so sorry that your MS seems to be revving up.. As River said, a dose of IV steroids, may stop the attack.

If you have sworn off all of the ABCRs, there is still the inexpensive LDN to consider.

I hope you are feeling better soon.
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Old 01-16-2010, 02:30 PM #4
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Alyluvsu, welcome! You and I were diagnosed at about the same time. I know what you mean about getting scared. After the initial shock of diagnosis wares off, you are face with some startling realities. Every bad day I have, I wind up thinking, “is this the way it’s going to be forever – and worse?”

One of the best ways I have found to put things into perspective is to follow this website. Get to know and understand others with the same problems – sometimes better, sometimes worse.

Anywayz – that’s what helps me.
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Old 01-16-2010, 02:59 PM #5
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I dont think MRI's see everything sometimes. Especially if they're using a lower power MRI machine (the 1.5 Tesla)

Some doctors seem to think that if it's not showing up on the MRI, then you must be ok, even if you're having a ton of symptoms that correspond to you obviously having a problem in the area that's showing up clear on the MRI.

I think it just means they need to use an MRI that's got a stronger magnet.
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Old 01-16-2010, 03:23 PM #6
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It is my understanding that as we progress our MRIs may show fewer changes.
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Old 01-16-2010, 08:46 PM #7
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Hi Aly.

My MS center tells me the #1 issue that MS folks complain about is Cognitive dysfunction. its frustrating, and scary, and most of the time cant be measured on something like an MRI or an xray. it is measured in mental questions, and tasks. I was told to keep sharp with mental things like crossword puzzles, try to learn a new language. Take up a new hobby. Walk a different path to the same place each day. On my walks I always went right out of the driveway, now somedays I go left or straight first.

I hope you get feeling better quick.
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Old 01-17-2010, 12:47 AM #8
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Thanks e1,
We also have to take into prospective the amount of stress ive been under since May of this summer.

But it does feel like something is going on tho.
I talked with my DR about seeing the neuropshyic again. She has agreed with me over that.
Im on a considerable amount of effexor XR also. Which can cause me to be off balance alot. I am also having that issue was well.
I am on a well balanced diet. I have been vegitiarian for awhile now.

I was put on the IVSM at the ER in the end of July. The MRI done with that episode showed my Brain MRI's are improving alot. But I still have these sx.

Im still at a loss over this,and left every confused.

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