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Old 01-23-2010, 03:19 AM #11
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In Remembrance
 
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freeinhou freeinhou is offline
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I had optic neuritis once in 1988. Complete loss of vision in right eye.

Timing is everything. The Optic Neuritis Treatment Trials had just started up. 3 day 240 mg/6 hr steroid IV thing - I was case number 1 at the Kresge Eye Institute in Detroit.

Vision came back ~ 90% within 6 months. Conclusion in my case - IV steroids didn't help nor hurt.

It's been 22 years - situation unchaged. Eyesight in right eye still slightly blurry.

Tom
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"Thanks for this!" says:
Dejibo (01-23-2010)

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Old 01-23-2010, 09:24 AM #12
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My MS MD said I have to adjust to the fact that I have a crappy disease, and it doesnt play fair. Not everyone with MS drags a leg, or needs a wheelchair. Some of you guys need cognitive help, and some need visual help. He said he always takes it hardest when he sees someone lose vision peice by peice. it reminds him of just how unfair this disease can be.

I said that great, now fix it!
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Old 01-23-2010, 02:24 PM #13
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Hi Dejibo, This disease just sucks. Really and truly. I'm so sorry to hear about your cognitive and visual problems. These two symptoms I had when I was first diagnosed and they scared me to death. Just a thought-- my neuro told me that Tysabri was very helpful for these two symptoms. I found that to be the case. I couldn't tolerate interferons and even the copaxone made me feel sick as a dog. So the Ty. was the other option. I'm getting close to the 2 year mark and will probably go off but it seems to be the most safe for a year. I'm not a huge promoter (I believe everyone should make their own choices of what's best for them). Just wanted to tell to tell you my experience. Hope you feel better.
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