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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Fampridine approved (https://www.neurotalk.org/multiple-sclerosis/112926-fampridine-approved.html)

barb02 01-23-2010 09:37 AM
If neuro and insurance approves it, I may give this one a try too.

Riverwild 01-23-2010 10:14 AM
My neuro likes this drug too. I told him one poison at a time for me.:p

kicker 01-23-2010 11:52 AM
I tried this bird poison (as I affectionately called it) had no real side effects except some very minor throat irritation) but with my PPMS and so advanced in a chair for a year it was not effective for me (You can't read the bitterness in that, can you?)

kicker 01-23-2010 11:58 AM
Quote:
Originally Posted by Taffy (Post 613473)
Hey, if I can get my neuro to let me take it and my insurance company will pay for it, sign me up. I still have my boots and pack stuffed in the dark depths of the closet and I know, :( probably false hope for longing to stroll the high country and smell the fresh mountain air. But hey, you got to go for it! :D

If prescribed, insurance should pay. Because I took it when not FDA approved, paid myself. Wasn't terribly expensive.

Grammie 2 3 01-23-2010 02:01 PM
Have been in the extended study and am hoping to continue it depending on the cost as I have to pay 25% co-pay:eek: It has helped me walk!
Believe I read it won't be available till March.
Linda

ginamass 02-02-2010 11:45 AM
Fampridine
 
I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now. The new sustained release is expensive!!
Gina

Riverwild 02-02-2010 09:47 PM
FYI,

It also has a beneficial effect on heat related symptoms for some people.

Grammie 2 3 02-03-2010 05:37 PM
Quote:
Originally Posted by ginamass (Post 617041)
I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now.

The new sustained release is expensive!!
Gina
Gina, how do you know what the cost will be and what is it ? I'm guessing costly but don't have any info.
Linda

Riverwild 02-03-2010 06:08 PM
More FYI

www.pharmalive.com/News/Index.cfm?articleid=682554

Feb 3, 2010 ... AMPYRA Wholesale Acquisition Price Set at $1056 per 30-Day Supply ... Launched for Uninsured and Underinsured To Provide AMPYRA at No Cost ...

barb02 02-03-2010 07:32 PM
Wow -- I hope my insurance will cover it. I have an appointment with my neuro next week. We'll see. Although, they covered copaxone and tysabri 100% so I would think it would cover this too.


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