Just on the site suggested it says 80% will experience incontinence with MS. The MRI suggest MS, but no idea if it will go ballastic or stay where I am now..I feel great right now.

Looks promising though from what I read of you here and it seems to not be a big issue actually. I feel happier right now:cool:

Thank you.

Some of us have the opposite problem. My "neurogenic bladder" just doesn't remember how to empty. I was told if I had the overactive problem, there would be treatment options, so you may want to check with your doctor. I agree with what others have said, and keep in mind no two forms of this disease are exactly the same.

!st of all, welcome to the forum. We have a great family here!

When I was 1st diagnosed I went to a MS association meeting. I saw a lot of things there that that scared the begeebees out of me. I didn't want to end up like 'those people'! I also did a lot of research. A person can almost imagine themselves having many of the symptoms with MS. You just have to give your body time to learn about itself and read but don't see yourself in everything. Be educated but not scared. I've been living with this stuff since 1997 and am planning on going to Disney World this fall and enjoying the heck out of myself and my grand kids!

I just seen this on a forum and it got me worried. It was a forum that had a post of someone peeing in the Wal-Mart parking lot. I have googled MS incontinence and got tons of results and facts with percentages of people having problems with it is around 80%.
Yet you all have no problems with it..I mean that you don't have incontinence.
Even the Mayo clinic says incontinence is one of the "common problems" Fatigue dizziness....things that I have felt.

It's just that the incontinence scares me the most, but the replies here form you all and the fact that many treatments are in effect if bladder stuff comes up, makes me feel better.
All in all.... pads and stuff like that seem rare to actually use..just if anything doesn't work....even then a cath sounds promising which will be what I do. I don't want to think about pads.
I've also met a 64 year old at the nursing home with MS....she told me to hang in there and visit her often(I will) She's in a chair and uses caths, but she seems able minded and funny as heck.

It's just been two weeks so nothing is affirmative yet.... I'm just going to try and not worry to much atm.... I also got a new radio control car to work on so I will concentrate with that right now(took time off from work)

Thanks you all. You all are so great and I wish you all the best as well.
I really mean that. I want to hug and get a hug, but this is the restriction of the internet.

Welcome EricP :hug:

Once you've been with us a bit longer, and read a lot more in the forums, you'll see that each and every one of us is that little bit dissimilar.

There are times when I feel like we all have a different disease, with just the name "MS" to connect us. Our symptoms can be so diverse.

I've had some incontinence and I've also had the direct opposite..... when I just could not pass my urine, but please know that I was diagnosed with MS over 30 years ago. I'm one of our older members .... well .... middle aged plus a bit :D... and my continence issues are only recent.

Please try to put this symptom out of your mind for now. 80% is a little far fetched... as I'm sure others here will tell you, and I'm sure there are many other things that you need to look into for now.

Have a read through this forum, and let us know if there's anything else we can help you with.

When I was first diagnosed I read everything I could find on MS. Most of it was on the Internet. And I probably talked myself into most of the symptoms I read about! It's just inevitable. But, in reality, I really only had a few of them. The more I read, the more I thought I would eventually end up with them all. And that's just not the case. I've learned that each of us, although we share a disease "name", each experience a totally different course. I've learned to take what I read with a grain of salt and realize that my MS is unique to me. It's taken a while but I've relaxed quite a bit and just take each day as it comes. Worrying about what tomorrow or even next week holds is just a waste of time and energy. :)

Hello Eric and welcome to NeuroTalk.

I have been diagnosed with MS for 24 years and I am not incontinent. There are a lot of different symptoms with this disease, some you will experience and some you won't.

Oh Eric. Reading stuff on the internet blindly can lead you to want to poke your eyes out! :eek: You will see miracle stories of folks that took ONE single diet, and were CURED! Then there are the sites that promote getting stung by bees! or the drink this juice, and leave your troubles behind folks! PLEASE read from reputable sources. NMSS.org is awesome, we are the folks living with this disease, and can tell you from personal experience what is or isnt working. Many of us have done extensive research.

In this group we have many very well educated folks. Some in the traditional sense, and some by the school of life. Most of us have tried this or that, or the other. Many of us have tried just about every drug out there for this MS monster, and what works great for one person, doesnt do much for another. This monster rarely affects two people in exactly the same way, even if you are identical twins! I have met twins with MS and one was in a chair, and the other was working full time in a hard job 12 hours a day, and running marathons. I have met twins that one twin has MS, and the other twin doesnt have MS!

Even if you do end up with bladder issues, there are TONS of ways to either deal with it, or medicate it, or be well hidden. This person peeing in the parking lot at Walmart sounds like they have other issues on top of MS. Walmart has FREE bathrooms to use, and they do an ok job at keeping them clean. Most every store out there has free bathrooms, and if you are having bladder trouble, you would learn where all of these spots are, and never let yourself get to the point of peeing in public.

Are they starting you on Meds? injections? pills? Have you done the MRI? the spinal tap? (many of us didnt have to get that)

Glad you stumbled in. Hope we can calm your fears.

I read about ON and kept waiting for it, figuring my neuro was the MS director of Johns Hopkins and the go to ON guy and would help me. Did I get it? NOOOOO. My ex PCP told her Intern I had MS and my legs wre numb. I said loudly "no they're aren't". Lot of misconceptions about MS by many out there. I have never peed in the Wal-mart parking lot but they are an evil employer you know. I go to Target instead but have never peed there either. My SIL sent me a bracelet that is engraved "One day at a time". Yes.

Peeing in Walmart parking lot? That would only happen if you held it so long you couldn't help it considering they have bathrooms. haha

Unless, they were waiting for someone in the parking lot. One time, and I don't have ms mind you, hubby does, I had to go so bad. He was visiting his dad at graveside. I had to use a can. Yep, it was the can or drench myself. What can I say? It even happens to us affiliated with ms. haha

In all seriousness, they have so many treatments for incontinence. Hubby use to wear an external cath and loved it. Well, didn't love it for real, but it kept him from having any accidents. Women don't have that option since our plumbing is different.

Stick around, you'll see that ms affects everyone in different ways. Hubby was diagnosed almost 22 years ago and is still loving life despite his ms. :hug: